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Is that actually in the document? They seem to have left an "un" off the front.

I'm confused by that graph: Why aren't PWME's heart rates going about 60 bpm? I thought our problem was struggling to keep our HRs below our aerobic (or something) thresholds?

For anyone who wants to complain to the BBC if they feel that the BBC was biased in allowing Sharpe to present his claims about his research with no one with the expertise to challenge his view properly - such as David Tuller, Jo Edwards, Carolyn Wilshire, Carol Monaghan, etc., the BBC tell you...

@Simon M - see above.

So Day 1 of the conference happened while I was asleep. Did anybody watch the livestream? Anything exciting? Do we know if they're going to post it on YouTube later?

@dave30th quoting the doctor in the article: So there is this group of patients that we now understand has an objective illness that is not psychiatric—whether it’s metabolic, neurological, or whatever. And what fascinates me is that this condition has been so mismanaged throughout medicine...

Thanks, Simone! To make it run for three days, you have to just do it again twice, for each of the other two days (not a very efficient system!). :)

Would you like to add this to the calendar, @Simone (via 'Thread tools')? It's being livestreamed:

I see that comments are allowed, @Jonathan Edwards, @dave30th, @Tom Kindlon, @Carolyn Wilshire...

And, for the fourth time of asking, 'liked' by 29 people now, can I please have a response to this: https://www.s4me.info/threads/open-letter-to-the-trustees-and-staff-of-action-for-me-about-the-toolkit-for-professionals.7629/page-8#post-143863 You posted this: And I replied this: So this...

Want to add it to the calendar, @Andy? :)

I misread this title as 'The Trish Times' and thought, 'Great! @Trish is doing a news blog!'

Can patients attend that?

There's on in Norway in March and the IiME one. Is that it? The CMRC are skipping a year, IIRC.

Good article, I thought.

Good idea. What do you think, @dave30th?

I would have been all in favour of that for the bizarre and insulting review of the Wilshire paper submitted to BMJ, that accused the patient-authors of not really being patients. Reading that review would really have opened people's eyes to the sort of irrational shit that PWME are up against...

Still, I like the idea of taking a thing from ME that needs to be applied across science and making sure everybody knows where it came from...

Doctor of Public Health, not PhD?

Thank you for responding, Clare. But I don't think you've answered my question. I said: So you don't say whether you accept that David's description is correct, and I can't see from your response that you accept that, if it is correct, AfME would have to contact DWP and explain that the...