Thank you @Adam pwme .
As listening to and watching videos for me is a much more demanding activity than reading, I am particularly grateful that you provide a transcript here as well as on youtube.
Very much appreciated!
A man called David Tuller just published an article on virology blog about this:
http://www.virology.ws/2019/07/29/trial-by-error-more-get-drivel-from-australia/
Letters to the editor
Letters for publication should be sent to these addresses. The sender’s full postal address and phone number are required, for verification only:
Guardian: guardian.letters@theguardian.com
Observer: observer.letters@observer.co.uk
Corrections and clarifications of...
Their interests:
"A committment to promoting effective non-drug treatments"
https://www.racgp.org.au/clinical-resources/clinical-guidelines/handbook-of-non-drug-interventions-(handi)/about-handi/what-is-the-handi-project
The authors...
There seems to be a problem with their evidence assessment system. GET was rated with the highest evidence level (NHMRC level of evidence I )
"The RAGCP currently use the NHMRC levels of evidence and in the future we will move to a GRADE process."...
From the transcript (T. Chalder):
Chalder did a trial with I. Marks and Wessely on cognitive behavior therapy for chronic fatigue syndrome (1997):
https://www.ncbi.nlm.nih.gov/pubmed/9054791
see also...
The corresponding author, P. Glasziou, is the co-author, together with the three principal investigators of the PACE trial, of the withdrawn Cochrane individual patient data review (protocol) on exercise therapy for CFS...
I seem to have misrepresented the listed studies by only quoting the abstracts of the studies that used fMRI.
Actually I find the earlier papers examining gait more relevant, see the papers I posted (again) here...
Eleonora Gentile, Katia Ricci, Marianna Delussi, Filippo Brighina, and Marina de Tommaso, “Motor Cortex Function in Fibromyalgia: A Study by Functional Near-Infrared Spectroscopy,” Pain Research and Treatment, vol. 2019, https://doi.org/10.1155/2019/2623161...
I find this puzzling, too. I can't understand how endorsing Dr. Myhill and at the same time referring to EBM to criticize ME research could add up.
Also, on the foundation's website, Dr. Myhill is listed in the category "Scientists involved in biomedical research" which to me seems to suggest...
https://twitter.com/LeneCch/status/1148902391250608128
https://fredericiaavisen.dk/stig-gerdes-sidste-laegegerning/
Google translate:
https://translate.google.com/translate?hl=de&sl=auto&tl=en&u=https://fredericiaavisen.dk/stig-gerdes-sidste-laegegerning/
Thanks to the ME Association for doing this.
Why not make this optional? Isn't it possible to report pwME's stories anonymized?
I think being exposed on newspapers and social media with their real identity will unnecessarily stress people.
I know it's not good but I thought being a bit ad hominem today could help me digest that some people still like to think the SMILE trial was a properly designed and conducted randomised controlled trial.
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