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I'm inclined to consider CJ's lovely letter as just more gaslighting of PwME. It's always nastier when they couch their ignorance in sweet sounding waffle that could mean anything.

I think along with finding strategies it's good to know what the deficits are exactly. I'm seeing some things that I recognise. @ladycatlover 's inabilty to change tack easily is one. Slowed processing speed is another I think I saw. I would add easy mental fatiguability. I have no cognitive...

I think then the problems might be more nuanced than this. (Here I'm stretching my capacity to think) but it may be something along the lines of how to think about the use of statistics. From reading here this seems not as clear cut as I would have imagined. Also, with this sort of research...

You're certainly right that CS can choose to advocate however he feels best. Perhaps there should be someone else at MEA who can function in a different capacity for the benefit of MEA's members as they raise issues like the one's here. I should stop though since I have no direct skin in the...

C Sheppard said: "But my view remains that personal contact with those involved, including an offer to meet and discuss and explain the controversies surounding PACE, CBT and GET, is going to be far more productive than making public statements which are only going to be read by people with...

I'm wondering if they're offering a similar workshop to all their psych researchers. It could prove enlightening. ;)

Hi @Amy101 I don't know you at all but I expect I'm not alone in wishing your family care and healing from a wound that will no doubt never fully leave you. I am so sorry that this time continues to be stressful for you. best wishes SD

I don't recognise her name. But I found this on her: https://www.foodsmatter.com/allergy_intolerance/total_food_intolerance/articles/annabel_senior.html

Pretty strong biases I would think. Unravelling the fact that PACE didn't show what they said, that it was not a great trial and that the voices of people with ME have been calling this out without being heard for a long time isn't rocket science.

I thought the quoted part was interesting as I don't think everyone got the memo (about RCT's) Certainly it must only apply to the US? For me this is something to bang on about. RCT are not a gold standard. IMO this is another idea that must die. That and questionnaire's and the belief that...

I must have quoted the today's date on viewing the article. <sigh> They MAKE it complicated. :confused:

Just a reminder that Ian Sample is the head science editor at the Guardian. His bioscience PhD is from QMUL. Even in the case of ME this may have nothing to do with anything but then again . . .

As is my way, I have archived it on the wayback machine (mostly because I know how to actually do that). And for the giggle factor. So this is what it's come to. This dude is definitely in his own little world on this subject.

I'm gonna carefully back away from that piece . . .

Shouldn't Natelson at least know better by now (regarding exercise for better sleep in ME). It's clearly stated in the Health Commissioner's (NY) letter that GET is not appropriate.

There must have been some robust discussion pre-publication. It was submitted in 2017. I like the Feynman quote as well. Gotta believe he's right. “Reality must take precedence over public relations, for nature cannot be fooled.” RF

Again? Sorry folks. I spend so much energy getting the title right. Link now added.

A longish read. I skimmed through. An interesting quote from near the end: The activists questioned the gold standard of medical intervention research – the randomised, controlled trial – and showed how a series of normative assessments are made in all medical research, for example how study...

From the discussion section of the paper: "This study assessed the feasibility of vibrational spectroscopy to differentiate individuals with FM from those with several other rheumatic conditions including RA, SLE, and OA. In addition, we wanted to determine if various degrees of severity of...

Hi @rvallee IIRC you may have missed one of the earlier accusations against us. I think I remember seeing us compared to violent animal rights activists.