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Newsletter 3 (Dec 2008) included participant feedback and reference to intervention inclusion in the NICE Guideline.

I'd like to know what you do when you read the word 'healing', but I couldn't finish reading your sentence as when I see the word 'healing' I stop reading these days.

Well, precisely. Browsing the site it seems like she thinks changing environmental factors might be of benefit, so whether she thinks she can 'switch on or off' genes that have supposedly been affected by ancestor trauma with changes to environment, I don't know. There is a list of potential...

Veering a touch OT, but this put me in mind of a Max Pemberton Daily Mail piece from Dec 2017 on transgeneration trauma. https://www.dailymail.co.uk/health/article-5137649/Psychiatrist-Dr-Max-Pemberton-makes-rethink-life.html Pemberton didn't give the reference, but publication dates and...

Potential implications for assessment of mental capacity where conflict arises re medical care decisions in severe cases. Potential for child protection/safeguarding referrals in cases where children have ME. [PDF]...

Ah. So I took you to be encompassing sensory sensitivities for the reason that Twisk references sensory functions in the abstract (5), and goes on to include photophobia, hyperacusis and hyperaesthesia under Sensory Dysfunction further in. I was also thinking of sensitivities to touch and odour.

I'm surprised by this. It seems to me that sensory abnormalities are well documented in PWME and I would have thought them a pretty uncontroversial aspect of the potential symptomatology a given PWME may develop. I'm thinking of hyperacusis and photophobia in particular, but no less other...

When you say you aren't sure sensory abnormalities have been shown to be 'more' common in PWME, with what group as it were are you making the comparison?

I think it varies depending on what you are looking at, but chronic pain, including fibromyalgia has by turns been described as MUS or as a LTC in IAPT materials. For LTCs there should be a co-morbid depression or anxiety (not required for MUS), but I can't speak to the realities of what...

Also: '“Fibro fog”, as it is often called[..]' Except it isn't. 'Fibro fog' is the cognitive dysfunction experienced by some patients with a fibromyalgia diagnosis. It isn't a synonym for fibromyalgia.

I'm not sure that there's no conflict at this point. Mikovits has had the Science retraction and lab materials criminal complaint, and drawn a lot of negative publicity and Wakefield parallels. I think she's attracted support from an anti-vaccination contingent I would imagine she feels she has...

In this 2010 paper: Conceptual Model for Physical Therapist Management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis Todd E. Davenport Staci R. Stevens Mark J. VanNess Christopher R. Snell Tamara Little Physical Therapy, Volume 90, Issue 4, 1 April 2010, Pages 602-614...

It may be that he is referring the fact they looked at a subgroup that met London criteria for ME. But he does use 'CFS' as acronym for 'chronic fatigue syndromes', and the two aren't synonymous. Also GET has turned into graded activity therapy.

Peter White is on the GMC medical register and Specialist Register: https://goo.gl/bG2mQJ

I don't have enough background to make any meaningful comment on the biochemistry, and perhaps that's cause enough not to comment at all. That said, my perception of Naviaux's Cell Danger Response model is that it's something of a pet hypothesis that he has sought to apply to other poorly...

If a patient claims they are believed and supported by their their family it can be taken they are enabled and the recipient of secondary gains. If they claim not to be believed and supported by their family it can be taken as evidence that they are not to be believed since the people reasonably...

@Dx Revision Watch - Thank you very much for submitting the request and justification for the Disorder of nervous system Supertype earlier in the year, Suzy. The inclusion is really good news. And just to take the chance to thank you once again for all your meticulous advocacy.

In another time, I would like to have seen Simon Wessely and perhaps Trudie Chalder for, and Stephen Fry and Christopher Hitchens against, in debate of the motion 'The biopsychosocial model is a force for good in the world.'

November 2013: Linking the Kickstarter page for Unrest (then Canary in a Coal Mine.)

I think Action for ME have misapprehended the meaning of outcome measures in assessing evidence as meaning the outcome measures that should be monitored by healthcare providers when assessing patients.