Search results

A lot of the information in this paper is incorrect/out of date.

Objectives: This meta-analysis aimed to assess the effectiveness and safety of Chinese herbal medicine (CHM) in treating chronic fatigue syndrome (CFS). Methods: Nine electronic databases were searched from inception to May 2022. Two reviewers screened studies, extracted the data, and assessed...

No idea why this came up on a search but it made me laugh......... Abstract Objectives : The purpose of this study is to find out the correlation between the Vocal indicators and the 'Buzhongyiqi-Tang questionnaire' and the 'Chalder fatigue scale.' Methods : This study examined the mean value...

Could Long COVID Become Lifelong COVID? https://www.webmd.com/lung/news/20220929/could-long-covid-become-lifelong-covid

PrecisionLife's Combinatorial Analytics Uncovers Chronic Fatigue Syndrome Susceptibility Genes https://www.genomeweb.com/genetic-research/precisionlifes-combinatorial-analytics-uncovers-chronic-fatigue-syndrome

ABSTRACT Objective: To identify research priorities of people with myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) and those who support and care for them. Method: Using the James Lind Alliance’s protocols, online surveys and workshops were held. The first survey asked...

there is some info here https://drlapp.com/resources/advice-for-pwcs-anticipating-anesthesia-or-surgery/ some info here https://www.thegracecharityforme.org/wp-content/uploads/2016/10/HospitalBooklet2012.pdf

from reading the reviewers comments (which are quite critical, particularly reviewer 3) they are also unfamiliar with CFS, but at least had the common sense to look up the diagnosis, although it was hardly the most widely used/up-to-date version.

would be good if it could be incorporated into an ME/CFS Journalist Primer (eg https://www.s4me.info/threads/journalist-primer-how-to-report-on-me-cfs-from-meaction.29163/)

Influence of Codiagnosis of Chronic Fatigue Syndrome and Habitual Physical Exercise on the Psychological Status and Quality of Life of Patients with Fibromyalgia Abstract Fibromyalgia (FM) and Chronic Fatigue Syndrome (CFS) are two diseases that are frequently codiagnosed and present many...

Belle and Sebastian singer: Living with ME makes me feel like a ‘non-person’ https://www.stroudnewsandjournal.co.uk/news/national/22811795.belle-sebastian-singer-living-makes-feel-like-non-person/

see this thread discussing same/similar issues https://www.s4me.info/threads/why-are-the-majority-of-pwme-rarely-mentioned.7732/

BA.2.75.2 variant is worrying experts. Here’s why

Alex Sobel Shadow Minister (Environment, Food and Rural Affairs) To ask the Secretary of State for Work and Pensions, whether she has plans to revise the assessment process for Personal Independence Payment to make it more accessible for those who live with ME or CFS by ensuring assessors are...

Most patients with Post COVID Syndrome (PCS) present with a plethora of symptoms without clear evidence of organ dysfunction. A subset of them fulfills diagnostic criteria of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Symptom severity of ME/CFS correlates with natural...

you can access the transcript (three dots next to +save on Youtube).

ah that's nice. although I'm not sure what this one's doing there How about using ME research papers to correct the narrative for pwME?

I watched this yesterday; it's quite difficult to follow as it's clunkily edited and 'jumps about' a lot. Not sure why its called '..Healthful journey' tho as it mostly describes her going thro increasing bad health.

Fraud and IAPT http://www.cbtwatch.com/fraud-and-iapt/

cbtwatch Unreliable IAPT Gatekeeping – Questions Sent To The Health Secretary, Dr Coffey http://www.cbtwatch.com/unreliable-iapt-gatekeeping-questions-sent-to-the-health-secretary-dr-coffey/