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  1. InitialConditions

    B12/Folic Acid and D3/K2 Supplementation

    I am very conflicted on this. I've actually had a serum active B12 test which came back in the normal range, so this is perhaps further evidence that I am not deficient. However, I look at the list of symptoms - some of them very specific - and think it is worth a try. My Dad's partner is a...
  2. InitialConditions

    B12/Folic Acid and D3/K2 Supplementation

    Merged thread Hi folks, Was wondering if anyone has self treated with B12 injections? I am looking to trial this. I tick many of the boxes for issues with B12 (fatigue, glossitis, vision issues) though my serum B12 is in the normal range. I am minded to try and source hydroxocobalamin and self...
  3. InitialConditions

    Burnout is making us worse at our jobs, according to the WHO

    https://qz.com/work/1629015/burnout-is-a-medical-condition-says-the-world-health-organization/ “Burnout” is big this year. The term has been applied to everything from being tired at the weekend to the malaise of an entire generation. Now the World Health Organization, an international body...
  4. InitialConditions

    Daily Mail: Three ME patients reveal the accusations they have endured

    I don't know if there is a tread on here about this, but it was confirmed this afternoon that Jennifer Chittick - one of the three women featured in the article - passed away yesterday. Shocking.
  5. InitialConditions

    Jen Brea: My ME is in remission

    my thoughts exactly. one thing I do feel is that she has gone *very* public with all this, very early (5 months after surgery). In the M.E. game, 5 months is nothing.
  6. InitialConditions

    UK: Sarah Myhill - 2015 Video: Chronic Disease - What's Really Going On

    This video is from a few years ago, from the Academy of Nutritional Medicine conference. We have in the first five minutes claims that ME, CFS, and fibromyalgia are 'not diagnoses' and of course the silly, totally unproven, equation ME = CFS + Inflammation. It should be possible for her opinion...
  7. InitialConditions

    Chronic fatigue tests being sold online

    this should be reported. it's a ferritin test in combination with a very basic thyroid test (just TSH i think). these should not be marketed as 'chronic fatigue tests'. even 'fatigue tests' may be illegal.
  8. InitialConditions

    Mottled veins in feet and hands. Worse in mornings. Circulation issue?

    I'm so sorry that you have to see my feet this early in the morning ;), but I'm interested to see if anyone here has the same issue. My feet, and to some degree my hands hands, look very different in the morning. Something is happening with the blood flow. I get a sort of mottled appearance...
  9. InitialConditions

    Recent update of NICE Committee Member list

    the PDF was changed on the 9th May. It doesn't necessarily mean there is a new member announcement. Could be something like a member's affiliation being changed.
  10. InitialConditions

    Recent update of NICE Committee Member list

    The latest change date is 09 May, so something must have been updated....unless it was something trivial.
  11. InitialConditions

    Recent update of NICE Committee Member list

    The committee member list PDF was recently updated (9th May). There are numerous additions from the last copy that I have. GP - Chris Burton Dietician - Jenifer McIntosh Nurse - Caroline Kingdon Physician - Gabrielle Murphy Physician - William Weir Community Paediatrician - Alan Stanton...
  12. InitialConditions

    Need help with poster for Millions Missing event

    Maybe quote Carol Monahan MP "one of the greatest medical scandals of the 21st century"
  13. InitialConditions

    How to distinguish between Dysautonomia and ME/CFS?

    i'm not sure whether you mean distinguising the two illness, or whether you mean attributing certain symptoms to one illness or the other. If it's the former, I am always minded to think about the immune manifestations (sore throat, swollen glands, etc.). These are not a feature of PoTS. But as...
  14. InitialConditions

    More PACE trial data released

    Great work John! I'm sure we'd be all grateful if in your own time you could collate the data and also let us know what hasn't yet been released.
  15. InitialConditions

    Psychiatrist Peter White at the Royal Society of Medicine 2008 - Defining CFS/ME

    Have just skimmed through this and will watch in full at a later date. Very telling. Very brazen about all the little slight of hand tricks his posse have used over time.
  16. InitialConditions

    Sore throats swollen glands

    I started getting sore throats when my ME started. It was one of those additional syptoms that made me realise I was probably ill with ME rather than anything else - such as fibromyalgia. I wake up with a sore throat often. I go through periods when it isn't really there, or is better, but I...
  17. InitialConditions

    Who is Simon Wessely?

    I was just looking into this recently after he claimed as much on Twitter. Many of his papers in the late 80s and into the 90s are concerned with the biology of this illness even if they have a psychiatric slant. He claimed to have made some findings RE cortisol. Anyone have more information on...
  18. InitialConditions

    General news about Fabricated and Induced Illness syndrome (FII)

    this whole thing makes me fuming. i don't know if I'll make it through the whole show without punching something.
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