The first sentence is Peter White's summary of his lifetime's contribution to scientific knowledge. Excuse me for not reading any further. How many decades has he been at it? And still little is known (by him) and it is poorly understood (by him). Perhaps it's time to pass the baton and find...
Do you take the paracetamol with a glass of water? How do you know whether it's the paracetamol or the additional dose of water which does the job?
When I get a ME headache I can take ibuprofen, paracetamol, and everything else available over the counter, or even the very strong stuff my wife...
I get this for a few weeks in the summer, usually when it's very warm at night. It stops me sleeping. I'll try a spoonful of marmalade next time, if I remember.
My heart rate monitor has never left me feeling frustrated and ashamed. In fact it never occurred to me to have any feelings about it whatsoever. It's a tool, a machine, a thing. As long as it serves a purpose I use it, and if it stops being useful I'll discard it, leaving it feeling rejected...
Very relieved to hear that a study involving Brian Walitt and small sample size who are "queried" on their retrospective memories ends up producing pretty much what I'd expect it would. Saves me having to re-evaluate my heuristics.
I was unaware of this recent transformation. PTSD is a horrible thing, but if it's now being widened, one consequence is that those suffering from old-style PTSD will be taken less seriously and their suffering will be more easily dismissed.
She seems to be suffering from some kind of anxiety. I'm not one to speculate wildly, but if I were, I might be encouraged that she seems worried that the psychological input so far has not been enough to reach whatever result she thinks should be reached.
Yep. I was always very performance and acheivement oriented, ambitious, striving, hard working etc etc, and also tried to make a difference doing voluntary work. One of the big changes with having ME was accepting that sometimes stuff just doesn't get done. And then accepting that nearly all the...
@Diane O'Leary I have read your arguments and I'm afraid I remain unconvinced. I don't have the energy to respond to every small point, just a few:
There is already a distinct name for the BPS approach - completely abusive bollocks. It should not be dignified with any other name, no matter how...
My diagnosis from the Charite in Berlin is:
Diagnoses: Chronic Fatigue Syndrome (CFS) (G93.3)
That's the best you'll get in Germany. A diagnosis of ME is simply not an option. It's not something the health service offers.
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