Search results

  1. C

    Proposed Letter to NICE

    On the basis that most big organisations are run from the bottom up, might it not be that they are just doing what they have always done, nobody has told them to do any different, and management has not a clue about what they are up to?
  2. C

    S4ME: Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire

    Here is something I bet you didn't know. Well, I didn't. "A chalder is an ancient Scottish dry measure...." What more can I say.
  3. C

    Guideline "Tiredness" by DEGAM

    Perhaps someone should ask what star sign is considered propitious for treatment.
  4. C

    S4ME: Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire

    I do not believe there is the vocabulary to differentiate, and, if there is, 99% of sufferers are unfamiliar with it.
  5. C

    Fatigue syndromes. Wessely and Powell 1989

    http://jnnp.bmj.com/content/jnnp/52/8/940.full.pdf Journal ofNeurology, Neurosurgery, and Psychiatry 1989;52:940-948 Fatigue syndromes: a comparison of chronic"postviral" fatigue with neuromuscular and affective disorders S WESSELY,* R POWELL This is an old paper and has no doubt been...
  6. C

    Campaigners in Scotland call for more ME funding

    @MEMarge In such cases have the families asked for a letter from the SS (sic) with evidence as to the efficacy of the proposed procedure, and full disclosure of any adverse events of (anonymised) patients under the care of the proposed clinic. One cannot help thinking that it might be worth...
  7. C

    S4ME: Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire

    On reading this I was reminded of the saying, in musical interpretation, that the notes are not the music We face the same problem, the words are not the symptoms.
  8. C

    (Scotland) North-east family speak of ME ordeal

    The hospital did a blood test and said she had ME. What blood test would that be? I forget, but was there not something about Greek tragedies where the Gods will give you what you want, but only in a way which you do not want it?
  9. C

    Proposed Letter to NICE

    Well good luck with that!
  10. C

    Nature: A reboot for chronic fatigue syndrome research

    And there was I thinking how he had, over the years, been wronged.
  11. C

    Nature: A reboot for chronic fatigue syndrome research

    According to Google he was creator of the Muppets.
  12. C

    Entire issue of Post Graduate Medical Journal (11/1978) devoted to ME

    The obvious question which arises after reading this is, was it purely American exceptionalism which led the CDC in 1988 to seemingly ignore the earlier serious body of work . They cannot claim to have been ignorant of it, as Parish and Shelokov were on the panel. However to read the paper...
  13. C

    Lancet Infectious Diseases: Editorial, "A proper place for retraction", 2017, mentions PACE in passing

    It would be difficult for an experienced writer to be quite so obscure unless he or she intended to be. The conclusion does not appear to follow from the premiss.
  14. C

    Entire issue of Post Graduate Medical Journal (11/1978) devoted to ME

    For the benefit of new members or visitors to the site, it is worth recording that Parish and Shelokov who contributed to this Journal were members of the CDC committee which established the name CFS. They resigned rather than put their names to the report. The other members of the committee...
  15. C

    Resources for Parents with ME - helping children come to terms with chronic illness

    I don't think I would read too much about it. I suspect that your judgment is at least as good as that of any author on the subject. You will get through it together.
  16. C

    Disability News Service: "Civil servant sparks fresh concerns over ideological basis of jobs strategy" [BPS discussed]

    Surely you won't need matching up with a chronic condition. I thought you already had one,
  17. C

    The Dopamine Imbalance Hypothesis of Fatigue in Multiple Sclerosis

    I shall watch this thread with interest. Thirty years ago good, experience, consultants considered that some of my symptoms, upon exhaustion, were similar to Parkinsonism-but without any particular tremor. It was the stooped, slow, shuffling gait together with a rigidity. The symptoms were, and...
  18. C

    S4ME: Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire

    I suspect that we are here getting to the nub of a part of the problem. There is a variety of types of fatigue expressed in different ways, over different time scales. Some people may suffer two or more types of "fatigue", all of which may be different to what others suffer. If people, who...
  19. C

    Guidance for commissioners of services for people with medically unexplained symptoms - 2017

    I'm sorry. Is it just me or does the "Objective" in that abstract not make any sense? Is it meant to be something like "To understand whether physicians communication with patients may contribute...etc"?
Back
Top Bottom