I had similar symptoms but maybe not as much pain as you. What helps me is keeping my hands below my heart; I've found new sleeping positions.
Maybe worth a try while you wait for docs apt.
@Sean I accidentally deleted my previous unhelpful reply, it was wrong anyway.
No promises but try clicking on the the utube symbol, bottom right of the video screen, I hover over each symbol until I find it.
That should change the www address to utube. Highlight the utube address and it...
@Trish said 'Could she contact a few GP practices and ask them how many ME patients they have...'
I have had four GPs in the last twelve years and asked all of them this question, they all said they had none. Yet in each practice a nurse told me that they had one nurse with ME.
@dave30th
This is the link to you, Holgate does the wrap/sum up immediately after you at 7.15:
Really interesting stuff. I got the impression that he wasn't expecting to follow you!
@Tilly I just can't like your posts but my heart goes out to you.
I think you are doing brilliantly in the most frightful of circumstances.
Wishing you everything for Friday.:hug:
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