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  1. Sly Saint

    New German guideline for ME published today

    I was just reading a translation of the german wikipedia entry for CFS: "In the mentioned list of criteria from 2011, the disease is divided into four stages: Easy: an approximately 50% reduction in activity level Moderate: usually tied to the house Hard: usually tied to the bed Very...
  2. Sly Saint

    Petition: Review treatment of people with ME in Scotland

    all submissions here: http://www.parliament.scot/GettingInvolved/Petitions/PE01690
  3. Sly Saint

    Petition: Review treatment of people with ME in Scotland

    I think you also deserve a wee dram of your favourite tipple:D
  4. Sly Saint

    Who said: don't bother testing patients?

    same in the current NICE guidelines: 1.2.2.4 Tests for serum ferritin in adults should not be carried out unless a full blood count and other haematological indices suggest iron deficiency. 1.2.2.5 Tests for vitamin B12 deficiency and folate levels should not be carried out unless a full blood...
  5. Sly Saint

    Who said: don't bother testing patients?

    very similar to his one about GWI; can't find the exact quote but it is something like 'to have GWI you only need to know someone with GWI'. eta: another tidbit, Mansel Aylward doesn't think PTSD exists. eta2: re GWI there's this one " The strongest factor associated with the belief [of...
  6. Sly Saint

    Who said: don't bother testing patients?

    you don't have to look at the one on PR, it's here: https://www.s4me.info/threads/simon-wessely-research-related-quotes.1304/ eta: if anyone wants to use it I posted this pic on that thread; Simon says:
  7. Sly Saint

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    you might want to take a look at this thread: https://www.s4me.info/threads/a-list-of-people-who-applied-for-the-nice-me-cfs-guideline-group-but-who-were-not-accepted.6449/#post-117312
  8. Sly Saint

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    see this thread for examples of NHS CFS services: https://www.s4me.info/threads/me-cfs-services-in-the-uk.5625/#post-118413
  9. Sly Saint

    Health Psychology 5th edition/David F. Marks with chapter: Long-term Conditions: Diabetes and ME/CFS

    Thread merged "Health psychology students will need to understand how to evaluate and critically-appraise the latest theory and research before it can be applied. This fully-revised and updated Fifth Edition takes a critical approach and places health psychology in a real-world context...
  10. Sly Saint

    Livestream Tuller and Hughes 2 Oct 2018 Newry : The PACE Trial: 'One Of The Greatest Scandals

    Full transcript (have done it this way so people can just copy and paste it into whichever format they want. Apologies there were a couple of bits when I think the Internet connection went(?) that I missed out. Also, although I have been through it many times, every time I do I find a...
  11. Sly Saint

    Trudie Chalder, BPS and MUS proponent - presentations, interviews and news

    just found this interview with TC from 2015: Exercise and chronic fatigue syndrome: an interview with Professor Trudie Chalder https://www.news-medical.net/news/20150324/Exercise-and-chronic-fatigue-syndrome-an-interview-with-Professor-Trudie-Chalder.aspx
  12. Sly Saint

    Who said: don't bother testing patients?

    . . . such 'inappropriate' referrals to physicians can lead to extensive physical investigation that may perpetuate the symptom patterns of physical attributions. Powell R, Dolan R, Wessely S. Attributions and self esteem in depression and the chronic fatigue syndrome. J Psychosomatic Res 1990...
  13. Sly Saint

    The Guardian's Science Weekly podcast - 2 November 2018 - What role should the public play in science?

    that is what the whole benefits system revolves around; 'if they can do x,y,z,....get to a testing centre miles away, climb stairs, fill out massive forms' etc etc. But what is not taken into account is the effort involved to comply and the cost to health as a result, and of course the fact that...
  14. Sly Saint

    United Kingdom: Dr Suzanne O’Sullivan (BPS neurologist)

    yes, and no. bottom line is she wants all neurologists to have psychiatric training so they can recognise and treat patients with what she reckons are psychosomatic illnesses (eg Dissociative seizures ).
  15. Sly Saint

    Cochrane ME/CFS GET review temporarily withdrawn

    " The secret of Goldacre’s early success is simple. We love people getting it wrong. Watching people making fools of themselves is always more interesting..." "Goldacre’s skill is to use all these examples of epic ignorance or failures to draw out important principles of how science actually...
  16. Sly Saint

    PACE trial data

    @JohnTheJack what happened with this?
  17. Sly Saint

    Psychology wiki

    @Brian Hughes anything you could do on this?
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