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Great to have this livestreamed!

IIRC there was a perception that the colloquium drew too heavily from US researchers last year, to the exclusion of others. If we're going to make progress, we need all the biomedical researchers talking to each other. I hope that a wide range of biomed researchers are invited this year.

I reckon this starts at 5pm UK time (9am Pacific time) and will finish at 2am (well past my bedtime!). Has a programme been published (as opposed to a list of speakers)?

@Jonathan Edwards, is the fact that the Japanese work is in Japanese a barrier to the work getting taken up? Is there anything that patients could/should be doing to get it translated, such as contact the team and offer to pay for professional translation, or try to find a patient with the...

He might need to keep his data quiet so as not to mess up his chances of publication. :(

Am I right in remembering that you (?) said that the Japanese work about brain inflammation wasn't about 'heating up' inflammation as patients would normally think of it but a sort of micro-inflammation, @Jonathan Edwards? (Sorry for my layperson's vague flailing!) I'm wondering whether Jarred...

Kidnapping Alex's post from another thread: Discuss! :)

I think that deserves its own thread! I'll start one.

Thanks! What goes on at the CMRC is very important to us all, and the conference is a window into that. It's hugely frustrating for us that most of us are too sick to go to these things and so it's great if someone reports back about the stuff that goes on away from the presentations.

Very succinct and powerful message from Bandt - congratulations to Christa for getting him on board.

Thanks Chris, and for all your hard work on behalf of patients. Will your comments be posted on YouTube with the other conference materials?

Fair enough. Having read his papers now, it seems that he's interested in setting up systems to reward good behaviour in science and he may well not want to get into publicly decrying specific work. Interesting that he wants to present the situation in science not as a crisis but as an...

So sorry about your 50 years, @Mithriel.

Naviaux's view is that the cell danger response of the mitochondria is involved (if I've understood him correctly). I'm not competent to judge it, though.

I agree that this is key, and also important to add refs to your own published work, @Graham, so that he'll take you seriously.

I've just got a big mouth and rant on a bit! :) Sorry, Graham! :nailbiting:

This is still nearly 1,000 words and it's a lot to read. Also, the reason why he should keep reading needs to be clearer from the outset. He's a professor, and needs to realise quickly that other professors think badly of these trials and that there's a lot in the public domain about it. In his...

@Graham, in another part of the letter you say: I was fortunate enough to meet a group of like-minded folk with ME, who tried hard to draw the attention of the medical community to this terrible situation... Queen Mary University spent around £250,000 on legal advice and representation...

Thanks for working on this, Graham. :thumbup: I don't think it's there yet, though. I'm still confused about what you want Prof M to do. You say: An essential question for me is whether you and other members will be willing to make a public stand when poor and misleading research impinges on...

Are there tests that need to be developed? If you could invent any test, what would it measure?