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  1. NelliePledge

    Illness perceptions in adolescents with CFS (2019) Cara Haines, Maria Loades, Cara Davis

    always disappointing when new Bath/Bristol stuff comes out and they’ve not deployed the shopping bags
  2. NelliePledge

    Survey: online input sought for ME app design (Center for Solutions for ME/CFS at Columbia Uni)

    To me Apps are just a flavour of the month type approach that policy makers and administrators and particularly politicians have cottoned on to as a way of showing activity on an issue or that they are “up with the latest trends”. No doubt in 5 years time there will be some other bandwagon they...
  3. NelliePledge

    2019 Ann W. Caldwell Lecture on ME at MGH Institute of Health Professions

    Should be required watching for whoever wrote the crappy Harvard material
  4. NelliePledge

    Trial By Error: Re-visiting My Questions for PACE Professors

    Yes I spotted she was trying a bit of “eminence” on you :wtf:
  5. NelliePledge

    'Consumer-Contested Evidence: Why the ME/CFS Exercise Dispute Matters So Much' PLOS Blog post by Hilda Bastian

    Yep fishing for insults. I don’t think it worked in June though as exchanges I saw weren’t capable of being twisted & spun
  6. NelliePledge

    Trial By Error: Re-visiting My Questions for PACE Professors

    Dunno about that she was moaning about him “insulting her again” on Facebook yesterday :thumbsdown:
  7. NelliePledge

    Open letter to the Trustees and Staff of Action for ME about the 'Toolkit for professionals'

    @Action for M.E. i may have missed it but I think this request for copies of the Hazel O Dowd and other GP videos hasn’t been addressed yet
  8. NelliePledge

    Blog: Maintaining high research integrity standards at PLOS ONE

    Yes it seems their definition of “require” “make available” “full transparency” has been conveniently flexible
  9. NelliePledge

    Pacing - definitions and sources of information

    Please read @Unable post earlier on this thread about pacing yourself
  10. NelliePledge

    Llewellyn King: The Deadly Hurt of Loneliness — It Kills

    In a way I am relieved that I live on my own and don’t have family/partner relationships to cope with. When I stay with family I find having less control of my timetable and environment constrains my ability to adapt to fluctuations in ME. At home - when not coping with PEM from doing stuff...
  11. NelliePledge

    Ethical classification of ME/CFS in the United Kingdom (2019) Diane O'Leary

    Think you’re right @Wonko it brought the wizard of oz to mind - Behind the curtain there’s a programmer
  12. NelliePledge

    Twitter activity of Professor Blanchflower

    This is getting into politics. As an ally of Gordon Brown Blanchflower getting slated by well known right wing blogger. The work programme DB criticised was the 2010-15 coalitions welfare to work programme. Using reference to thalidomide was possibly unwise but many people wouldn’t disagree...
  13. NelliePledge

    Twitter activity of Professor Blanchflower

    It was 2006-2009 but the role doesn’t involve regulating the banking system
  14. NelliePledge

    Twitter activity of Professor Blanchflower

    He used to be on the Bank of England monetary policy committee that decides each month whether the Bank of England interest rate should go up or down.a key role in the UK economy.
  15. NelliePledge

    Daily Telegraph: Living hell or yuppie flu? The confusing fog of chronic fatigue syndrome

    @ladycatlover love it I’m rewatching Rumpole of the Bailey in the afternoons at the moment - very therapeutic :D
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