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I would argue it’s not at all helpful. It is easily turned against us.

instead of working on getting employers to be more open minded they’re telling people applying for jobs to blag their way in. Which is only going to make employers think disabled people are liars and they are going to be even less open minded in future :banghead:

or more specifically a case of the bad ex trots

Agree about India. In the U.K. it is only quite recently - 20 years- since some (not particularly effective) medication became available that dementia diagnosis and cause of death has been taken up and recorded. It is spoken about much more openly and deaths are no longer put down to pneumonia...

Or simply that is a lot easier to be frank when you are leaving a job than when you have just taken it on.

Same issue was raised last year and possibly 2 years ago there doesn’t seem to be a will to make it truly accessible to people with ME. I believe the response before was let us have suggestions. And I think my response was as one of the main charities for people with ME AFME should be setting...

Yes @Barry i think it would be good for us all to start using these legal terms about the (lack of) safety of GET.

Id advise on writing to MEPs that unless you have another email you can easily adapt to send maybe wait to see what happens mid October. If 31 October does go ahead they won’t be able to do anything. If it doesn’t they will have a bit of time to flag their support and efforts of writing...

Not sure what’s been achieved by this initiative

Indeed and in the absence of others no embarrassment factor

Thanks @Andy I have also now signed

Signed up for an account and I can see the petition but there’s no obvious way to sign it

all of us from the U.K. need to get this signed if we’re going to support it.......

Access is the only improvement of the current situation in my area because the service is community based as part of the pain service rather than at the hospital based clinic. But it is still the same content if anything in the last few we’re hearing of people having GET recommended by the...

You can only see the truth if you have your BPS goggles on

Hopefully others will be along soon to play bad cop to Hilda Bastian’s good cop.

That’s what I said in the second sentence @Trish. It’s not about the EBM label it’s about actually having sound evidence. Maybe I’m dancing on a pin head but the BPS folks are no doubt all claiming they’re doing EBM.

Hopefully this will set a standard for objective measures that future studies will need to follow in order to have a shred of credibility.

Aren’t we just saying we want to be clear that the statement definitely does not mean that we think the organisation should support the current flavour of the month known as Evidence Based Medicine or EBM. We simply think it should support basing medical practice on sound evidence. Can’t that...

New review starting in 2020 goodness knows how long it will take before it is published.