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There is only one single line item for ME/CFS in the federal budget - and it's the CDC program. The Committee Report Language accompanying the funding increase directs the money to be used for a national epidemiological study of ME/CFS in the USA (the first of its kind!) and expanding the...

Tell Your Senator to “SUPPORT A FUNDING INCREASE FOR ME/CFS” Today! Thanks to your hard work during ME/CFS Advocacy Week, the U.S. Senate Appropriations Committee is currently considering our request to increase federal ME/CFS funding to $9.9m. Ask your Senator to support this request today...

Special giving opportunity: Honoring the leadership of outgoing Solve M.E. President & CEO Carol Head Two generous donors have joined forces to match your gift, dollar-for-dollar, to inspire $75,000 in giving by June 30! https://solvecfs.org/june-30-challenge/ Solve M.E. President and...

Advocacy Action: Urge your Representative and Senators to Support Improved Coverage of Clinical Trials! The CLINICAL TREATMENT Act (H.R. 913) was introduced by Representatives Ben Ray Lujan (D-NM-03) and Gus Bilirakis (R-FL-12) to guarantee insurance coverage of routine care costs for clinical...

Note from moderators: threads merged. Your Advocacy in Action: ME/CFS Senate Resolution Passed! Your ME/CFS Advocacy Week efforts made a difference! The Senate Resolution in support of International Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Awareness Day is now the official stance of...

Thanks, Andy!

Happy Monday everyone – If you have any researchers, academics, or scientists in your networks – please share this ME/CFS Researcher Toolkit just produced from the SMCI Science and Discovery team. https://solvecfs.org/wp-content/uploads/2019/04/Toolkit-2019-Final.pdf Also, just a...

Carol Head Radio Interview - Sunday May 12th

Your Advocacy in Action: Our ME/CFS Senate Resolution is Moving! Thanks to your efforts during ME/CFS Advocacy Week, Senators Markey and Collins will be introducing our resolution recognizing International ME/CFS Awareness Day. This is the last chance to urge your Senator to be a part of this...

Speakers announced! Tuesday, April 2nd 9:00am ET - EmPOWER M.E. Roundtable Solve ME/CFS Initiative (SMCI) is hosting our first ever EmPOWER M.E. Roundtable on April 2, 2019 moderated by Board Certified Patient Advocate, Sharon Stevenson, DVM PhD. As part of Advocacy Week in Washington DC...

Bumping this quickly - Please register by End of day today!

Thank you everyone for your support! We just heard we had 43 bipartisan co-signers for Labor-HHS and 42 for Defense. Great work!

Links to the letters: letter to the Labor-HHS Committee letter to the Defense Committee Sample Request E-mail: Support Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in FY2020 Dear Representative XXXXX, I am writing to ask you to co-sign two appropriations request letters...

URGENT ACTION ALERT: SUPPORT A FUNDING INCREASE FOR ME/CFS! We need YOU to contact your U.S. Representative. Your voice makes all the difference. Our champions, Congressmembers Lofgren and Eshoo, are currently asking for support for TWO requests that can increase funding for ME/CFS research...

ME/CFS Advocacy Week Online Training Part 2: Welcome to DC: #CongressFight4ME Wednesday, March 27, 2019 1:00 PM - 2:00 PM EDT//10:00 AM - 11:00 AM PDT Solve ME/CFS Initiative and #MEAction present an online workshop to walk you through joining us in Washington DC for ME/CFS Advocacy Week &...

ME/CFS Advocacy Week Online Training Part 1: Best Practices for a Successful Advocacy Meeting Wednesday, March 13, 2019 1:00 PM - 2:00 PM EDT//10:00 AM - 11:00 AM PDT Solve ME/CFS Initiative and #MEAction present an online workshop to help you host a successful meeting as part of ME/CFS...

Thanks for sharing, Andy!

Thanks for sharing, Andy! Feel free to send me any questions you might have.

Last call for this action! Deadline is 5pm ET Wednesday 12/12 - get your messages into congress today! https://solvecfs.secure.force.com/actions/kwac__takeaction?actionId=AR00042

Good news! The deadline has been extended to Friday - please take action and share this far and wide! We need as many co-sponsors as possible before the government shut down! https://solvecfs.secure.force.com/actions/kwac__takeaction?actionId=AR00042