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I absolutely agree with the analysis in @Woolie 's first post. I am not sure I quite agree with the second but I think it is pertinent in this context. As a general point, I think MR spectroscopy may have been under-utilised in this illness. MR spectroscopy is where you do not so much try to...

I have hunches but not with any good evidence. I do not think that inflammation as such is involved. Some other sort of signalling has gone wrong. The idea of disordered adenosine receptor function does intrigue me, although I do not think there is actually any good evidence for this.

Charles S would be the person to advise.

There was no slot for any feedback. I think that was right. Lady Mar and Charles and Jen and Jessica put their story to the representatives of the people. It would have been crass to ask for a response. I think everyone was grateful that MPs came and sat right through and several made it clear...

James was preparing this around eighteen months ago and he had a session on it at IiME colloquium where he got input from the entire international research community. James takes a very measured responsible view of things and insisted that if people wanted change they needed to provide good...

Oh, Woolie, what a bloomer! Intentionality is a philosophical concept and is defined by the Stanford Encyclopedia of Philosophy as "the power of minds to be about, to represent, or to stand for, things, properties and states of affairs". The once obsolete term dates from medieval scholastic...

These conferences often invite good people along, who are happy to have expenses paid. It is the audiences who are idiots, (unless they are just general public with time on their hands) because there is no reason to go to a conference of this sort other than having so little idea of your own...

Because they are not scientific audiences. These 'conferences' she speaks at are more or less invariably phoney meetings set up by dubious sponsors who operate much like Fox News. When colleagues speak a lot at such meetings it gets noticed in the end - or at least it used to. Nobody with any...

Ahh!, shoots, and leaves, at dawn, is it?:p

I am not suggesting anyone should back off but I am seriously thinking Dr Crawley needs some help. She is way out of line in terms of what is acceptable in terms of scientists' behaviour. Since the summer there seems have been a change to something altogether bizarre. I am not surprised that Dr...

Only because people misuse it!!

Interesting indeed. I am tempted to say not so much a dark underbelly as the whole spectre of a pink elephant in the room. As a result of psychotherapy one member of our family was led to believe that her parents were wicked and she never spoke fondly to them again until they died. That is...

MPs did not contribute to the discussion directly as far as I know. The MPs present looked as if they were already interested in advocating for more research for ME but I do not think any specific opportunities were identified. I don't think anyone was expecting that.

It seemed to go very well. We only saw 20 minutes of the film and I hope to see the full length in a week or so at Biobank. Several MPs including Vince Cable were there.

I suspect they were not invited.

I cannot divulge the identity of the company but it is a large Biotech company that has shown interest in MECFS as part of its Neurology programme. I am hoping that I may be able to nudge them to set up a collaboration with other groups in academia but it is up to them to decide. At least they...

I fear I am going to be critical, but trying to be constructive for the forum. I have read through most of it. The trouble is that a lot of it is wrong. The microbiome is not an 'infection'. If bacteria get into tissues and cause problems this is associated with a 'acute phase response' with a...

I saw the Stalin film last night and hope to see Unrest at the Houses of Parliament on Tuesday. The Stalin film is impressive, not least because famous faces like Russell Beale and Palin delight with masterful characterisation while sort of winking at the audience in a pantomime way at the same...

We can probably make this a disposable prototype thread too. When we have decided on how to give space for coverage of these organisations I can suggest something a bit snappier.

I think it may be old news now so could be archived as a discarded prototype.