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what funding is this? when will we find out where this recently-publicised Aus Government money will go?

hmm. with all due respect, looks like a poundshop ME Action. ;-) I could see this being the personal project of one person.

the guy who put this together has been quite active on social media recently. he's sort of jumped in, all guns blazing - can post about mold, brain injury, ME, enteroviruses within a few minutes of each other. without being disrespective, he's getting a bit carried away. we could do without...

I'm not sure if it is really. I have actually been on NAC recently. Too short a period to see if it has changed anything. These episodes are sporadic anyway.

No, this sounds pretty similar. I also have tinnitus. Now seven years of no silence :-( . I have no doubt the tinnitus and the vision issues I have, and perhaps these episodes before sleep, are all connected.

glad you've had a good few weeks. I'd agree that you need to give this much longer, given the cycle of worse and better weeks/days that so many of us have. let us know how you get on!

yeah, this sounds like we could be experiencing the same thing although I stress that this was not dreaming as I was fully awake. Too awake, almost. it's like you can't control your train of thought and the associated mind imagery that goes along with it.

I don't know how else to describe this. Maybe it's just what others call 'tired but wired'? This started about a year ago. I would go to bed and once the light was out it became apparent just how frantic everything in my brain was. It's like my brain is bouncing around in my head. There is no...

I had to laugh at that poll. I mean, is that the most pointless poll on a page ever, or what?! :banghead:

the quality of writing in these local papers is so very poor these days!

I still don't know where the money is going...!

Hi folks, This could have gone in the Pain and Inflammation sub, but I chose this sub because what I seem to be experiencing is worsening muscles issues which I think are linked to fatiguability. My muscles are just so sore. I am now getting this slight burning pain I associate with...

First that's an awfully written article with mistakes and repetition of full paragraphs. Looks like he is now an LP practitioner in Canada: https://thrivingtherapies.com/ https://lightningprocess.com/canada/jason-mctiernan/ I honestly don't know what to make of these stories. It frustrates me...

I totally despair. She's in it for the papers (and subsequent funding) isn't she. This stuff is not worth the paper it's printed on. It's amazing how much work you can get out of an awful questionnaire.

god i hate this. it reminds me of those dark early days around the Lake Tahoe outbreak when the media used to refer to the illness as this. I think it's maybe an Americanism...?

yep, this is one of those content writer jobs that you see on freelancer or upwork.

Has anyone read the series of three papers she put out (which she talks about in the podcast)? I don't want to judge a book by its cover, but they look very amateurish. The latest news is that they have a new paper ready to submit, and are 'finding an appropriate journal' which is probably by...

she has a history of engaging in pseudoscience - anti-vax, pro-homeopathy, etc. her little equation ME = CFS + Inflammation just has no scientific credibility.

This page (https://www.citizensadvice.org.uk/benefits/sick-or-disabled-people-and-carers/employment-and-support-allowance/before-you-apply-for-esa/eligiblility-for-esa/) states: There are 2 types of ESA - called ‘contribution-based’ and ‘income-related’. You can be eligible for either, or both...

If that is the case, how come you can claim contribution-based in addition to income-based? How would that work...?