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  1. W

    Easy ways to donate time

    What about testing donated jigsaws for charity shops? Or is there too much time pressure? Some places apparently just count the pieces, but that's stupid, because a "500-piece jigsaw" doesn't necessarily have exactly 500 pieces. If you can hold the needles, crocheting things and knitting a...
  2. W

    Cleaning tips and recommendations for cleaning products

    My sister has some cloth things with strips of copper interwoven for cleaning scale - she's quite impressed with them, but maybe they might require too much rubbing effort to be useful here? They came from some mail order company or other.
  3. W

    UK Action: Ask CCGs to buy MEA Purple Books for GP Surgeries

    My understanding is that even "full-time" GPs have a day off a week for study (and no, I'm not having a go at the definition of "full-time" - GPs work ****** hard).
  4. W

    UK: Disabled mum who killed herself failed by benefits agency

    This was on the front page of yesterday's Guardian: https://www.theguardian.com/society/2020/feb/07/dwp-benefit-related-suicide-numbers-not-true-figure-says-watchdog-nao :(
  5. W

    New MEA Guide: ME/CFS The Ten Key Aspects of Management | 05 February 2020

    I can understand the reference to "gains" in the sense of the supposedly typical pwME being someone who's very driven and overworked (not for nothing was it nicknamed "yuppie flu") being forced to slow down and cut down on work/activity at one end of the spectrum, but NOT e.g. in the case of my...
  6. W

    British tennis player with 'chronic fatigue' wins 2020 Aus Open doubles

    Can't read it because The Times has been playing up for a week or 2 on my computer, but I think one of the other British tennis players has had CFS as well - was it Katie Boulter? (There does seem to be a higher-than-average incidence of glandular fever among tennis players - it's been...
  7. W

    Pressure in legs

    ( Compression stockings are available on prescription in the UK, although weirdly enough, since they come in a pack of two, it's one prescription charge per stocking :( )
  8. W

    Fragrance sensitivity

    Not to mention allergic reactions, as unfortunately happened to someone I know of on her wedding day - despite the invitations specifically asking people to avoid perfume/aftershave/hairspray. She ended up being hospitalised. Those scents have certainly triggered migraines in me before now.
  9. W

    Use of antidepressants for/with ME/CFS?

    And here's me wondering whether my caree might do better reverting to one of the -triptylines than she currently is on the mirtazapine! Horses for courses, I guess ... (Edit: oops, that's in response to some rather old postings - should have checked before I posted)
  10. W

    Hearing things?

    Thanks for the confirmation, everyone. Yes, she does have tinnitus, too, which may be related, and she is having a particularly bad crash at the moment. If anyone's found a way of dealing with it, please do post! It's getting her very stressed at the moment.
  11. W

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Test Your Strengths and Gaps in Knowledge Authors: Nancy Klimas, MD

    :facepalm: UGH, yes, how insensitive. Is it reflective of the rest of the article? (I'm working, and haven't got time to read it at the moment)
  12. W

    UK All Party Parliamentary Group being reactivated - 2020

    Why do I just get "Loading Tweet" when other people can clearly see things, does anyone know?
  13. W

    Hearing things?

    My caree, having spent quite a long time this evening suffering from the noise (vibration?) of downstairs' bathroom extractor fan (we think it must travel along the joists, or something), swore blind she could still hear it, or something similar, way after it had been switched off. Does anyone...
  14. W

    Who's Who?

    Not sure where the right place is for this, so apologies to Mods if they need to move it, but is there a thread or something which lists ME researchers, doctors and so on with a(n objective) thumbnail description of what it is they do? I see so many people referred to, and I don't always know...
  15. W

    UK: PIP appeals - advice, recommendations?

    Another one I've just come across on the B&W website: https://pipinfo.net/ I do wish I'd known about all these before we started this PIP application.
  16. W

    Article in The Times (London) 10/12/2019 on microbiome (mentions 'CFS')

    @JohnTheJack (or anybody else): I don't know if you're aware, but if you have a subscription to The Times you can share an article with others, presumably by clicking on a "Share this" button or similar, so that the paywall can be bypassed. It produces a different URL containing the words...
  17. W

    PEM for those who are, or were, mild sufferers, how would you describe it?

    This thread is starting to get me a little concerned as to whether, after all these years, I may have started developing a mild form of ME myself. (It's not contagious, is it?) Or is it just that I'm run down and/or possibly menopausal which might be creating similar symptoms? I'll keep more...
  18. W

    Pain in ME–what helps you and what can I do?

    When I started reading your initial post, I thought "This sounds very much like RSI (repetitive strain injury)." I used to suffer really badly with that - it got triggered initially by my sitting with my elbow in a draught in a theatre, of all things! - and it took me a long time to work out...
  19. W

    ME [briefly] in University of East Anglia Video

    Ooh, I hadn't heard about this new institute. I'm wondering how much of the campus they have left to build on now - hopefully quite a bit still. I see they are into FMT as well ...
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