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  1. Sly Saint

    UK - Nominate someone for an honour or award (honours list)

    https://www.gov.uk/honours (Was going to put in the title but wanted to gauge opinion) suggest Jane Colby (TYMEs trust) eta: thought of JC because it might highlight what has been happening re children and parents being persecuted for FII; the last question Carol Monaghan managed to raise in...
  2. Sly Saint

    Blog: BMJ Opinion: Tessa Richards: Should patient advocates adopt guerilla tactics?

  3. Sly Saint

    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    too early for this..(?) https://www.s4me.info/threads/christmas-2018.7294/page-3#post-131342
  4. Sly Saint

    Article Psychology today 2019 - What is the scientific evidence for the direct harms of EMR?

    https://www.psychologytoday.com/intl/blog/digital-world-real-world/201911/does-mobile-phone-radiation-cause-symptoms eta: just found it interesting how they identify key methodological errors in the research, only to then replace with alternative theories with equally dodgy research evidence.
  5. Sly Saint

    Editorial: The Challenges of Sharing Data in an Era of Politicized Science - Bauchner,Fontanarosa Nov 2019

    full editorial here: https://jamanetwork.com/journals/jama/fullarticle/2756117 (note, article was retweeted by MS who is now 65th President and Chairman of the Board of the Academy of Consultation-Liaison Psychiatry)
  6. Sly Saint

    Body mass in adolescents with chronic pain: observational study - Gauntlett-Gilbert, Bhat,Clinch 2019

    https://adc.bmj.com/content/early/2019/11/28/archdischild-2019-317843?rss=1
  7. Sly Saint

    Understanding neuromuscular disorders in chronic fatigue syndrome [version 1; peer review: 2 approved] - Jammes, Ritornaz Nov 2019

    https://f1000research.com/articles/8-2020
    • Sly Saint
    • Thread
    • 2019 anti-oxidants hsp jammes me/cfs muscle neuromuscular disorders paper potassium ritornaz
    • Replies: 3
    • Forum: ME/CFS research
  8. Sly Saint

    Open Medicine Foundation (OMF) fundraising

    Merged thread from an email (Europe, as opposed to EU)
  9. Sly Saint

    Denmark: Analysis and comments to Karina Hansen's journal from when she was sectioned at Hammel Neurocenter

    To Minister of Justice Nick Hekkerup and the Ministry of Justice 14 Nov 2019 full blog here https://translate.google.com/translate?hl=en&sl=da&u=https://fredericiaavisen.dk/&prev=search
  10. Sly Saint

    Article: Anti-vax, anti-science and the pitfalls of sharing a ‘rare’ condition with a celebrity, Nov 2019

    full article here https://overland.org.au/2019/11/anti-vax-anti-science-and-the-pitfalls-of-sharing-a-rare-condition-with-a-celebrity/
  11. Sly Saint

    ME: A terrible disease (in German)

    came across the english version https://www.freitag.de/autoren/wreiter/a-horrible-disease
  12. Sly Saint

    Prevalence and Treatment of Chronic Fatigue Syndrome/ME and Co-morbid Severe Health Anxiety, 2019, Daniels et al

    haven't read the paper but from what other people have gleaned I take it they did not try to tie any of this in with frequency of visits to a GP as they usually do for MUS? The recent surveys showed that most pwME 'avoid' medical appointments. They would do better by trying to understand why...
  13. Sly Saint

    Risk of bias tools in systematic reviews of health interventions: an analysis of PROSPERO-registered protocols - Farrah,Young,Tunis,Zhao Nov 2019

    so this method could be described as 'quasi modo'....(?) eta: 'the bells, the bells'
  14. Sly Saint

    Podcast: CBT for Chronic Fatigue Syndrome: Dr Lucy Maddox, Trudie Chalder

    KCL PSYCHOLOGY STAFF ELIGIBLE TO SUPERVISE (as at November 2019) https://www.kcl.ac.uk/psychology-systems-sciences/assets/phd-supervisors-psychology-department-november-2019.pdf
  15. Sly Saint

    Risk of bias tools in systematic reviews of health interventions: an analysis of PROSPERO-registered protocols - Farrah,Young,Tunis,Zhao Nov 2019

    full paper here https://systematicreviewsjournal.biomedcentral.com/articles/10.1186/s13643-019-1172-8
  16. Sly Saint

    Telford woman releases book to help children understand adult illness, 2019

    The book is set for release in spring 2020 full article here https://www.shropshirestar.com/entertainment/telford-entertainment/2019/11/25/telford-woman-releases-book-to-help-children-understand-adult-illness/
  17. Sly Saint

    A Trial of ME - Elizabeth's Story. #MEAction article, November 2019

    but she wasn't a PACE participant(?)
  18. Sly Saint

    Engaging stakeholders to refine an activity pacing framework for chronic pain/fatigue: A nominal group technique -Antcliff, Keenan et al Nov 2019

    now on sci-hub https://sci-hub.tw/10.1002/msc.1430 eta: I think this thread could be put in the ME/CFS subforum eta: started reading but didn't want to ruin my day
  19. Sly Saint

    M.E., UK Research Ethics-Public Health Journalist Dr. David Tuller & Guests Nov 5 2019

    @dave30th re EC saying why they did the trial I think more of concern is when she went on to say “If the Lightning Process is dangerous, as they say, we need to find out." so they hand the kids over to therapists with unrecognised qualifications, performing an unknown therapy without...
  20. Sly Saint

    NIH Job advert Nov 2019

    National institute of Environmental Health Sciences, Research Triangle Park, NC https://www.training.nih.gov/postdoc_jobs_nih/view/_31/6990/Methods_in_Statistical_Genetics_and_Bioinformatics
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