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Montreal conference casualty. You are not alone.

From https://en.wikiversity.org/wiki/Motivation_and_emotion/Book/2014/Fear_as_a_motivator According to protection motivation theory there are four factors that our behaviour is based on. These four factors are; The perceived severity of a threat Our belief/confidence in our abilities to...

In some sort of perfect world, the common message / slogan would be rolled out on 3 fronts: Paid media: put down the cold hard cash to produce an ad and pay for air / digital time to get a message we control out to the masses Earned media: large distribution but less control over the message...

We've got enough footage know to make a sizzler to shop around, so we'll hopefully establish a production schedule soon, then after that will be the editing / post production process, then the distribution plan will emerge...so a long while...but we'll be using clips in other social media in the...

Interesting. I thought the ME - ASD connection was that when toddlers get hit with whatever causes ME (eg enterovirus), it manifests as ASD, and that because the toddler is still growing, it also affects their development reflected in somewhat impaired social / emotional connection. If that...

Great to connect with you...how did I not get you on Facebook Live to get the word out about your site? For others, our Facebook Live video from downtown Toronto...fighting for funding...and fighting back tears....

Oh, so sorry to hear you got slammed too - no doubt conducting the interview with Isabelle added to your exertion...and added much to our documentary, thank you for doing that. I concur, from the couch is the way to watch for patients - we'll have to push hard for accessibility via...

If memory serves, 1989 and 1991.

Why you should click through to the actual article on TheBody.com: Way back in my life before ME, I wrote a blog for TheBody.com called: "HIV+ Triathlete: Til I Drop" The blog was a short term project about living with HIV while training for an Ironman triathlon. Remedy Health Media, the...

I'm dreaming of May 13th with lots of horizontal time. But every other patient that was at the conference that I've talked to has crashed, so I'm very lucky to be somewhat functional.

LIVE ACTION SATURDAY! Prime Minister Trudeau Apologizes to Canadians with ME. Okay, not quite yet -but wouldn't that be great? Prime Minister Justin Trudeau needs to see Canadians with ME on Millions Missing Day on May 12th if we want to move meaningfully toward equitable health care and...

The infamous 'Learned Helplessness' slide by Dr Alexis Goth. I interviewed her after her presentations and challenged her on this slide. We'll post the interview at some point in the near future. Suffice to say her reply was babble. Turns out she's only seen about 10 - 15 ME patients. She was...

I think given our community's limited funding, our efforts may be best focused on creating media, rather than trying to buy it. Even earning media (unique story, breaking news) is hard and they rarely get the message accurate, sometimes creating more confusion, esp around terminology. When we...

@MsUnderstood Does anyone believe the Statistics Canada number is accurate? Probably not. Does the Canadian government have any other data they have produced about prevalence of ME in Canadians that can used in advocacy? Not publicly. Have you taken your concerns about the data to Statistics...

Mixed emotions: At $280k a year it beats the current $70k one off. So now we have another crumb to go with the one crumb we've got. Equitable ME research funding is about $92M / year. Its not a fait accompli - Health Canada rejected an application in 2016 because it took a biological, and not...

Calling ME an environmental illness is a category mistake and unlikely to be overall helpful. However, currently it is helpful in that a Task Force has been created and mostly helpful recommendations have been made and it does the give the community a point of leverage. We can't throw out the...

Meanwhile in Canada, in spite of over 580,000 diagnosed, Health Canada in its wisdom, has allocated $70k. All of that, plus more from patient groups, went to fund the ME conference next week in Montreal titled "Advancing the International Research Agenda". Without major funding for research...

Doing a little happy dance. (Okay, only in my head.)

Awesome, thanks for your speediness.

Hey folks, I'm trying to find the quote or link to the apology (maybe a year ago) by a Scandinavian (I think) Prime or Health Minister to ME patients. Any one have that info? Thanks much, Scott