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I didn't find any of the 6 you listed.

Was that recorded, per chance? I'd like to hear that bit.

Has any one used RED Lab in Belgium for any of their testing? "R.E.D. Laboratories is a private Belgian company, focused on developing and performing specialty research and diagnostic tests for chronic immune disorders, intestinal dysfunctions, tick-borne diseases (Lyme disease) and...

“Researchers from these world-class institutions came together in a grassroots way to successfully isolate the virus in just a few short weeks,” said Dr. Rob Kozak, clinical microbiologist at Sunnybrook. “It demonstrates the amazing things that can happen when we collaborate.” I am both...

A bastardized version of the James Lind Alliance process was used by Mary-Ann Fitzcharles to the detriment of Canadians with FM. The Canadian Journal of Pain published Manfred Hath's critique: "The current issue of this journal includes a paper by Fitzcharles et al., who used the JLA...

I suspect one day science will have advanced to realize: All research into subjective experience is disqualified if researchers lack that lived experience. That's why I'd like to see physicians in training required to experience severe illness, like ME, for a week. That lived experience is...

I told my HIV+ friend about the research -- he said, dripping with sarcasm, "Oh, so that's why my fatigue disappeared when I switched one of my HIV meds. It corrected my dysfunctional thinking."

Done.

I've not noted any side effects -- pre-rapamune my max walking capacity on flat ground was 15 minutes -- about a month later I could do 30 - 40 minutes, so about doubled my exertion window -- I also noted that PEM was harder to induce, and the symptoms were less intense and shorter lived.

I started in November 2018 and continue to take it. Initially at 1mg / day at breakfast (with fat to increase absorption) - but in the last year I done as little as every 3rd day for a few months - currently moving to a Mon - Wed - Fri schedule. David Sabatini is the go-to guy for mTor research...

It was. At the end, I found myself wishing the reporter had of actually interviewed the government people as opposed to reading their statement (that effectively undermined and dismissed what the patients reported). But the govt people may not have wanted to appear on camera.

I stumbled on sodium thiosulfate -- It is used historically for cyanide poisoning, but they are discovering other properties / uses -- the anti-inflammatory and neuroprotective effects piqued my interest: https://www.jneurology.com/articles/medical-uses-of-sodium-thiosulfate-neuromed-1-1032.php...

Done.

https://www.encyclopedia.com/science/encyclopedias-almanacs-transcripts-and-maps/antigenic-mimicry "Antigenic mimicry is the sharing of antigenic sites between microorganisms and mammalian tissue. An immune response can be directed both at the microorganism and at the host site that shares the...

For sure - I'll DM you.

Awesome, thanks so much for the heads up, this is great to know -- I'll take this to our team for action and keep you updated on how it goes.

Or 2 or 3 so decision-makers can feel like they made a decision.

iirc about the PKU tax court decision, one of the key criteria is that more than 14 (?) hours per week must be required for illness treatment/support (or whatever language they use). Theoretically, since resting / pacing is key for ME patients not to become more disabled, it could be argued...

Ditto. And they'll be oblivious to the patient's trauma caused by being repeatedly gaslighted. That's where they'd may actually be helpful instead of further embedding harm.