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https://twitter.com/TomKindlon/status/1187374034905899008 https://discovery.ucl.ac.uk/id/eprint/10080812/

I agree with most comments that this is good news. (Edited to add: ) Thank you everyone involved. My only criticism goes to the Birmingham Mail's picture editors: https://www.birminghammail.co.uk/news/health/cause-worlds-cruelest-illness-could-17130013 I think that MEA include a range of...

So within whose remit is it?

Trial By Error: Bristol’s Report Due Soon; Slides from My Oxford Talk by David Tuller, DrPH

By David Tuller, DrPH http://www.virology.ws/2019/10/21/trial-by-error-bristols-report-due-soon-slides-from-my-oxford-talk/ LP Study talk

How about just adding to the sentence... "Overall, it seems that the Cochrane logo is hindering a critical assessment of the evidence" ...something like: "Since the amended review leaves the main problems unresolved, this misleading impact will likely continue." ?

I reiterate the thanks. Or delete a part of that second sentence and merge it with the first? "On Wednesday, October 2, Cochrane published a long-awaited amendment to its review of exercise therapy for chronic fatigue syndrome (CFS). [1] Several changes have been made to the text following a...

From the participant information sheet linked in the opening post: I am skeptical as to whether this 'Neurosky MindWave' and the apps are actually able to measure all those things. Also, I find it strange to describe "how calm or clear-minded" someone is as 'Meditation'. Further quotes from...

Sounds promising.

Does anyone who was there feel up to letting the rest of us know how it went?

Thanks Michiel for another useful overview. Does the Cochrane review actually differentiate between GET and any kind of exercise? As far as I know GET isn't recommended or even offered in Germany, only any kind of exercise ("Bewegungstherapie", "Aktivierung") -- but I think the Cochrane...

In Tovey's last released e-mail from 29.05.2019 he isn't that firm anymore: But I don't know what to think about what he said about where he got this new ideas:

New thread on suggestions for a letter to the editor-in-chief: https://www.s4me.info/threads/letter-to-new-cochrane-editor-in-chief.11669/

Thank you @Andy. That's more than I hoped to read. Just missed the clarity to word my suggestion. I think it just needed one ore two additional words: "Is this something S4ME members would like to consider setting up together?" Don't feel up to starting a separate thread right now, but would...

Thank you all who are working on the Cochrane case. I'm not able to read much or word a substantial critique. However, I think the easiest and quickest measures Cochrane now could undertake as a first setp to take evidence-based medicine and patients seriously were to add the editor-in-chief's...

I'm glad you found that psychiatrist. I agree with others' suggestions that ten years after having had a stroke there probably aren't substantially effective treatment options now. To me it seems the new diagnosis might rather be valuable in acknowledging a potential or additional reason for...

Again, I stop by with a trivial point. I'm sure this has been pointed out already, but still this limitation of the review is not sufficiently addressed in the abstract, and not at all in the conclusion. To not specify the features of patients not meeting these selection criteria for the...

https://www.s4me.info/threads/jama-advances-in-understanding-the-pathophysiology-of-chronic-fatigue-syndrome-by-anthony-komaroff.10281/page-2#post-181985

Please add me, too, @Michiel Tack: MSEsperanza, ill with ME since 1998, officially diagnosed with "CFS" in 2005, S4ME forum member since 2017.

Thank you for explaining. I agree it's worth trying to avoid misunderstandings. I rather shouldn't post when I don't feel up to it, but just leave two more thoughts here today: I think there is no need to be afraid of the (reasonable/ high?) standards we apply to research or other scientific...