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I'm going. One of thr most positive days of the year! Hope you and your wife make it Andy.

Just shared this excellent podcast on Facebook, with a note asking people to sign the EDM. Thanks again Gary B

Yes, Dr Peter Barry, a paediatrician from Leicester. His main specialisms seem to be intensive care, and inhalation meds (asthma I presume, mainly) https://www.le.ac.uk/childhealth/staff/pwb1.html I had a quick look and he has been on at least a couple of NICE GDL committees. One was on...

Hi @Binkie4, we managed to get Chicaguapa in as a second MEAction rep alongside Nathalie Wright. there are also another couple of Mums coming from a parents' group. Interestingly, the Surrey FB support group has been granted stakeholder status, though not soon enough to send reps. However a...

Mine still hasn't signed

UCL now see the teens who used to be seen at GOSH (Great Ormond St Hsp). Same nurse heads it up.

Yes. good balanced article

I thought one of the IACFS/ME conferences was in Ottawa, something like 2011? Early on in my daughter's ME life.

Good article.

This idea was raised by someone in the Crowboro group who works part-time in Brighton. She had heard about this and I suspect she contacted ME charities to advertise it. If it catches on I think the fact that many people are at a demonstration to highlight their illness, while others are...

Shouldn't post on here that late in the evening!

Great show Barry, thanks so much.

@Dx Revision Watch I am shocked and saddened by this

I think that the people who have organised the last few #MM London events were not well enough to do it this year, so the planning was maybe a bit delayed while new people got on board.

Locomotor Service? That's a new one to look out for!

Great acronym @Trish

Absolutely Annie I think this is very important.

Location says Brighton, so I assume it will involve Neil Harrison.

At the AGM of AfME, they said that when they get a significant legacy donation they try and use it for a specific project that they would not be otherwise able to fund and had decided to fund this advocacy project via an organisation in Geneva. I think their members and the rest of the ME...

Invest in ME is a small charity that mainly runs the annual International Research Conference in London. Richard and Pia have two "children" - with ME and their Chair has ME herself. Jo Best posts on here on their behalf. They do not have members as such. So I do not know whether any of their...