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This was a really useful collection of Wessely quotes, complete with clickable links to references for the publications each of them came from: https://www.s4me.info/threads/simon-wessely-research-related-quotes.1304/ . So you might find some helpful papers or books within the references.

Remember Dr Cheney specifically said 'colds and flu': viral illnesses. So that wouldn't apply to tooth infections, urinary infections and other bacterial infections. I did still get those and more, just not colds or flu! Yes, I don't get out and about much due to ME but people I've lived with...

I wonder if it might be that COVID is such a novel virus that it's not similar enough to colds or flu to trigger previously 'learned' immunity? However, since I wrote that last post, it does seem that what my husband got was COVID, was same sort of symptoms as last time, but - I didn't get it...

This is a truly excellent video, so comprehensive and well-researched. Thank you for all the hard work put into it. :thumbup:

Here's some 'starter packs' on Bluesky to get started with: ME/CFS Advocates: https://bsky.app/starter-pack/mecfsskeptic.bsky.social/3lb2n3xzjom2c ME CFS Long COVID: https://bsky.app/starter-pack/lindaoh.bsky.social/3lagl6khbkr2z ME, Long COVID & Co...

Ugh, 'Oh dear' is right. I do wish people who don't know anything about a subject would restrain themselves from making authoritative-sounding statements about it.

It may have been the case for Sophia, but the idea of people with ME having a fatty liver is something I remember coming across for multiple patients and it was not stated that they were overweight. I myself am very slim, so if my weird liver problems are due to having a fatty one, it won't be...

Ironically, I don't eat ANY of those sorts of foods and don't have a sweet tooth, preferring savoury foods - I eat a super-healthy wholefood organic diet, no sugar, no white flour products, no ready meals, no packaged foods, no junk foods whatsoever. Just fresh raw vegetables and meats to make...

When I had an improvement from severe to moderate some years ago (after private treatment; no help whatsoever from the NHS aside from being offered CBT, which I declined), I found I could go out for short gentle walks for the first time in years (prior to illness, I had regularly gone for long...

I guess I didn't describe that well enough, it starts with waking up groggy feeling full of toxins (hence 'appallingly ill'), followed by feeling 'exhausted' rather than feeling 'rested' or 'refreshed' as I wake up more fully. Yes, that seems exactly it, after waking up feeling like I'm at...

In my own n=1 experience, what I mean by 'poisoned' is that I feel like my system is full of some sort of noxious substances that have built up and won't clear. This is not necessarily only from alcoholic drinks, nor from a crash, but I also feel like that when I first wake up in the morning...

I relate to this 100%, 'tiredness' or 'fatigue' has never been the issue for me either, but rather being hit with feeling deathly ill and toxic. And then a frightening sheer total exhaustion following along secondary to that. The idea of running toxicology tests when someone with ME is in that...

It showed an abnormally high GGT. Bilirubin and everything else on the test (ALT, ALP, Albumin, Total Protein, Globulin) were all within normal limits. I don't know what any of it means; from reading a bit it sounds like GGT is very much to do with alcoholism, but may also be to do with viral...

This is very much my experience too, horrendous flulike/toxic-type symptoms and muscle weakness. And beyond that, I even get a bad reaction to alcohol-containing cosmetic items such as deodorants and skin lotions. Just the smell makes me feel 'off'. I developed intolerance to caffeine. Didn't...

Excellent summary, @Hutan Between that and the clip posted by @Adam pwme a few posts up, where Garner is again introduced as a 'COVID expert', I do wonder who told these news outlets that Garner is a 'COVID expert', when he is so clearly out of his depth. Am really pleased that on the Nicky...

Nobody here is arguing with science. Dr Garner's opinions about ME are a belief system, though, which is a different thing. Please don't believe that old meme, nobody is being put off going into ME research. There are loads of good new researchers going into the field. The only thing 'putting...

I, too, prefer 'cognitive problems' instead of brain fog. I've never been able to relate to feeling like I'm going around in a fog; I tend to think it as 'brain farts', because it feels like something 'misfiring', rather than feeling 'foggy'.

Ahhhhhh yes I think that's it!! I had a very vague memory it was said by a doctor but no recollection as to who. Thank you! And again, interesting that you, too, weren't getting the colds the rest of the family were getting. So strange.

Thanks, everyone, very interesting to hear everyone's different experiences. Sorry I probably wasn't being clear enough in the OP (the usual good old brain farts), what I meant wasn't that the person had improved to where they feel well enough to go out and mingle and get exposed to more bugs...

Oh yes you did answer a question I asked, which was that you too had stopped getting 'proper cold symptoms' after becoming bedbound with ME. And also very interesting to hear that when you were milder, you felt the best you had in ages when you caught a cold. There does seem to be something...