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I agree.

I would say Alem, but thinking strategically I would say Jen. She is more visible right now than anyone else and can capitalise on it for all of us. More likely to gain votes if we are serious about this. Strategy. There's no doubt Alem deserves an award. @Graham has been in contact with his...

Bumping because this offer ends tomorrow

Excellent, thanks to @Andy and any others involved in setting this up Big thank you to the Biobank Team

So far I think the select committee are doing ok (I've been following some of this on parliament tv) but of course it remains to be seen what if any good comes of their work. Should be in every newspaper, with factual detail.

They don't want to know. Or admit they know. But now they know we know.

if being visited at home- 13. "I've brought my kitchen timer, how long do you want me to set it for? I'll put the kettle on."

I hope for all our sakes that cheap blood testing is achievable. I'm sure they're working hard on it.

Good question! @Keela Too and @Trish are right. Staying safely within the energy envelope is important for our ongoing health. I wish I had known this a lot earlier in my illness. I have found Keela Too's blog very helpful. You could consider stretching exercises or something like yoga. These...

I had a look on PR and there didn't seem to be a thread on the biobank christmas fundraiser appeal so I made one.

I agree, @Kalliope , this is really good. I hope it's publication in the Journal of the Norwegian Psychology Association helps other children with ME in the future

Thanks Andy I was really surprised to see it listed! I'm not sure I believe it, but every time I look (signed out) it's there :laugh: It'd be great if the offer was available elsewhere too.

Just seen this: Amazon Prime are offering reduced rental of Unrest in the UK until 17th of December as a prime member deal at £1.99...

Well I hadn't read it before so thanks for posting it just for me! eta or maybe I have, but I don't remember :cautious:

But random mutation is supposed to have a far more profound affect on evolution. What you are talking about perpetuates an existing genetic line/s, with adaptation within the potential of those genes. And learned behaviour/knowledge passed on generationally occurs under those conditions. The...

SW has his ducks in a row for a happy future. I wouldn't be surprised if from his perspective he can afford to loosen his grip on PACE; his position in the establishment is secure, his image well protected. I expect his income is too. He's not always right though, is he.

I see Mady Hornig has signed the card :) But not my family, lazy sods :mad:

@Jenny TipsforME Do you think it would be useful for Mendus to have a thread of its own?

@NelliePledge I think that's it too. I'm waiting for those minutes with interest. Good idea. I'd like to see the charities working together more. Why are there so many of them?!!

I'm sorry you get that recurring pain. Her injury was to her ligaments, possibly she did have some pain recurring pain(?). But the limp would magically disappear completely as soon as we turned 180 degrees and she knew we were going home. No limp all the way back. It was very striking. I...