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  1. Binkie4

    Study shows yogurt may dampen chronic inflammation linked to multiple diseases

    Well having just eaten a coyo yogurt, I am glad I am eating to reduce inflammation. It says low fat yogurt but I believed low fat food often has increased sugar to make it palatable. How does that fit with reducing inflammation...
  2. Binkie4

    #MillionsMissing today, 12 May - post news, tweets, etc. here

    Really impressed by the NYC demonstration. The repetition was great, involved everyone there. Just watching round the world from my bed. So sad for all but research, funding....what does ME need?
  3. Binkie4

    #MillionsMissing today, 12 May - post news, tweets, etc. here

    Thank you @Jaime. Strong and very moving.:hug: Edit: the hug- I wanted to give you one when you finished speaking
  4. Binkie4

    UK - The Young ME Sufferers (TYMES) Trust

    But you try @Barry and that means so much. Your comments are extremely sensitive.
  5. Binkie4

    inTune Choir is Going Blue for ME Awareness Day at Wheal Martyn, St Austell, Cornwall 3pm on Saturday May 12th

    Thanks @Liv aka Mrs Sowester. Will try to listen to the livestream but will it be posted for a later listen? Good luck.
  6. Binkie4

    ME Association: ‘ME Awareness Week 2018’ New Early Day Motion Launched by Carol Monaghan MP

    Thanks @Andy. Just glanced over them but couldn't see anything recorded re a discussion involving Carol and where/how her campaign is going. Is she going to continue being involved in /with Forward ME? There has been a meeting since then on 1st May, but no minutes yet registered.
  7. Binkie4

    ME Association: ‘ME Awareness Week 2018’ New Early Day Motion Launched by Carol Monaghan MP

    Does anyone know if the minutes of the Forward ME meeting that Carol Monaghan attended have been posted?
  8. Binkie4

    David Tuller Trial By Error: My Visits with Alem Matthees

    Betty Hough posted on several ME sites that Jen had crashed. She was interviewed on her sickbed. Will try to find a link. ETA: I think this is Jen's fb link so scroll if it's not at the top...
  9. Binkie4

    MP Nicky Morgan to raise awareness of ME illness

    I have written to Nicky Morgan to thank her for her interest, as well as writing to ask my MP to sign the EDM.
  10. Binkie4

    David Tuller Trial By Error: My Visits with Alem Matthees

    @dave30th -thank you so much for visiting Alem during your time in Australia. I wasn't able to write before because I was stunned with sadness and pain after reading your post. I knew Alem was ill but had not appreciated how much of his functioning he had sacrificed to get that data released. We...
  11. Binkie4

    FoI request regarding an 'activist list' in the Sunday Times Magazine in May 2013

    Have we got confirmation from the police that they were involved and requested Wessely to install panic buttons? It was a very powerful 'story' in 2011. At that time I took it at face value and believed it absolutely. Now I do not accept such accusations uncritically. I prefer to see the...
  12. Binkie4

    FoI request regarding an 'activist list' in the Sunday Times Magazine in May 2013

    Remember that when Trudi Chalder was questioned under oath at the Information Commissioner's Tribunal and asked about harassment, she said she had only experienced being heckled by one person at a seminar, and I think she said ( but this would need checking) that she did not know of any...
  13. Binkie4

    ME Association: ‘ME Awareness Week 2018’ New Early Day Motion Launched by Carol Monaghan MP

    i do feel we should be taking Carol's work forward in some way. Does anyone know if anything is planned? Sorry- just have to go to bed.
  14. Binkie4

    Petition: Remove CBT/GET from NICE guidelines NOW (ALL COUNTRIES can sign)

    If people are asking their MP to sign the Early Day Motion, could they add this too?
  15. Binkie4

    ME Association: ‘ME Awareness Week 2018’ New Early Day Motion Launched by Carol Monaghan MP

    I have written to my MP asking him to sign (with link) and to contact Carol Monaghan to express his interest in this issue. Also said that a priority this year will be to get NICE to withdraw CBT and GET now. He signed the petition for that but there may well be additional work this summer...
  16. Binkie4

    There’s a yawning gap in ME/CFS research funding. Take action. (Simon McGrath blog, May 8)

    Yes. Ron Davis has put out a call this week for regular monthly donations to OMF to increase reliable regular funding. In the past we have donated substantially to AfME only to become better informed and regret it. Don't want to be bitten twice. It's difficult in UK unless it's ring fenced for...
  17. Binkie4

    WHO ME/CFS coding - April to May 2018

    @Dx Revision Watch -Are you able to tell us @Charles Shepherd/ MEA's position on this? Is this a Cof M(chair) decision or that of the committee? ETA- @Dx Revision Watch added
  18. Binkie4

    The ME Show

    Thanks to @Robert 1973. Apologies for not mentioning your song. Have been listening to it and posting about it for a little while now. Works really well including the visual aspect. Hope it is sung at #millions missing.
  19. Binkie4

    The ME Show

    Loved it. Interview with Jen Brea went deeper than usual clips. @Hutan's quote above is an example. It is hard to face all that we have lost and I felt very emotional. Was interested in her statement that they are showing 'Unrest' in med schools in US this year, and have plans for doing the same...
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