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  1. Binkie4

    Cimetidine: An immune modulator that actually seems to be working for me

    I am currently taking omeprazole to prevent gastric issues while taking indometacin. I have wondered if cimetidine could be substituted. @Woolie 's dose is high however. I have not noticed any benefits for ME from omeprazole at my level of 20 mg once daily nor any side effects.
  2. Binkie4

    Cimetidine: An immune modulator that actually seems to be working for me

    Very glad you have made an improvement @Woolie but lacking in understanding why this drug ( Zantac? )should have this effect. I am in UK so have no access to biological treatments. I saw Dr Bansal yesterday but had no focus for my appt so did not make best use of the time. In what...
  3. Binkie4

    ME/CFS Australia (SA) Inc Co-Signs International Open Letter

    What about AfME? I seem to remember a problem last year or have I misremembered this? Can anyone amplify? Clare Ogden? MEA, IIME and 25% group have signed.
  4. Binkie4

    Leonard Jason wants ME/CFS patients to do a PEM survey

    Completed and now submitted. The save and return feature worked fine. I couldn't have done it in one go.
  5. Binkie4

    Leonard Jason wants ME/CFS patients to do a PEM survey

    Completed half and saved to finish later. Too much for one go.
  6. Binkie4

    Healthwise to "retire the GET/CBT topics" from medical content

    @Webdog Thank you so much for pursuing this until you reached a satisfactory conclusion. Very well done.
  7. Binkie4

    Donation to Tuller/research as respond to our critics

    Imo, but this may not be everyone's view, it is most important to get across the idea of justice and ME. Donations and science follow and can amplify the basic message which needs to be succinct and clear. Everyone has a perception of what justice means and probably ME. I think Sharpe was stung...
  8. Binkie4

    Donation to Tuller/research as respond to our critics

    " patients with ME are demanding justice" Peter Tatchell, who irritated Sharpe so much, began his tweet with the above words. Think justice and ME are very good words to have together. Gets to the essence of our case, helps reverse the vexatious patients narrative. #JusticeforME. ED: or...
  9. Binkie4

    Donation to Tuller/research as respond to our critics

    Of the last suggestions, I prefer #JusticeforME. I think it's important to get ME into it. I stand with Science is not specific enough imo. Everyone could support it without it being obvious that ME is the issue.
  10. Binkie4

    Action for ME's administration and how that affects its views about treatment

    Yes. That fits with my recollection; perhaps Truro.
  11. Binkie4

    Action for ME has joined S4ME

    Knowing what we do now and what was known before the Pace results (will try to add link here later-link below) I am enormously fed up that AfME took the line it did. There was plenty of research around showing the failures of GET before 2010. A withdrawal from PACE and an apology THEN should...
  12. Binkie4

    Action for ME's administration and how that affects its views about treatment

    Have a recollection of past discussions over the road. Didn't Prof Pinching work in the West Country, and wasn't he " a good guy"? Really am foggy so hope I've remembered this correctly.
  13. Binkie4

    Action for ME's administration and how that affects its views about treatment

    The Medical Advisor prior to Dr Purdie was Dr Alastair Miller but he didn't join till 2010, a year before PACE was published. Some information about him below including comments are interesting. http://www.merseysideskeptics.org.uk/2009/10/skeptics-in-the-pub-november-19th-alastair-miller/...
  14. Binkie4

    David Tuller's new crowdfunding campaign (April 1, 2018)

    You are a good man @dave30th. Feel privileged to have you work for/with us.
  15. Binkie4

    David Tuller's new crowdfunding campaign (April 1, 2018)

    Thank you @dave30th. Loving your work!
  16. Binkie4

    S4ME is looking for another representative for the NICE ME/CFS Guidelines review process

    Soooooo.....glad @Graham. I liked maths at school and maths teachers. No doubt given more of a chance, I would learn to understand your humour. I quite like weirdness. Not that you have ever seemed weird to me.
  17. Binkie4

    S4ME is looking for another representative for the NICE ME/CFS Guidelines review process

    Am sorry if I have caused confusion. I meant to support MeMarge as the second representative of S4ME. Terminology supposed to be slightly amusing. Obviously it missed its aim. Just to be clear- I join with @Graham and@arewenearlythereyet in supporting MeMarge as S4ME representative.
  18. Binkie4

    Why I want to lie down in public - BBC

    Before I got to the wheelchair stage, I used to carry a light stool hooked over my shoulder, and when I had to stop and stand which was harder than walking, I used to sit on it. In New York, I even sat at the kerbside as I waited for traffic lights to change. I never knew I was breaking the...
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