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Can I just put a reminder here that the advice I got from my MP (who I asked to attend but can't) has caused me to think of working in another direction, see earlier for full advice page 6. Obviously Carol needs to be fully briefed and am sure we and she are working hard on this. It is not the...

I have not been able to read the whole thread yet but wanted to insert here advice from our MP. We have worked with him before and approached him to invite him to next week's debate but he is unable to be there although he did attend Unrest. He has however expressed an interest in being...

Really glad too see you here @dave30th. Those blogs were a beacon of light in a very dark world. Glad they are back! And welcome!

@Trish-my conclusion too.

" It said that SPSS and Stata software is required "(point 12) Is QMUL saying that they don't have this software in the University? Absolutely agree with @Liv aka Mrs Sowester.

Thank you @Indigophoton. Think I fit the era of drawers and keys better.

"QMUL has explained that the Chief Investigator of the PACE trial retired from QMUL on 31 December 2016. While QMUL remains the holder and owner of the raw data from this clinical trial, it has effectively lost the means to locate and extract it because this requires specialist knowledge. There...

I Cannot access it but it was there yesterday. I wanted it for info for my MP. Anyone else? I don't tweet.

@Liv aka Mrs Sowester and @ukxmrv thank you for your description of your experiences . I need to do loads more reading. Am surprised I've not come across Berg's protocol before. Also I usually have low O2. It was 92% when I was in hospital last week. I think there may be a thread here from...

I visited the dentist yesterday and had some retained roots removed. I had to sign an A4 sized consent form listing all possible " risks" ( that was the word used), and how frequently they occurred e.g. Rarely, very uncommon, small risk etc. I was given a copy to take home with me. While it is...

@Mij Any link? -no rush

Thanks @Mij Obviously great care is needed. Absolutely no one has suggested that my coagulation status may have something to do with ME. I need to read the articles carefully. I think I saw somewhere that 75% of pwme ( need to check this) had an acquired or genetic coag issue. I had heavy...

https://livingwithchronicfatiguesyndrome.wordpress.com/2016/08/23/heparin-for-me/ Just found this on the RCCX site. Views are that heparin helps ME/ CFS. @Liv aka Mrs Sowester , and @Mij . EDIT: article refers to acquired or congenital coagulation disorder, acquired being caused by infection...

That's interesting @Mij. I have never heard or read that taking heparin could/ would reactivate the virus. It interests me because I took heparin for 6 weeks in March/April 2007 after hip surgery and was diagnosed with ME early in 2008. ( I had severe EBV in 1986 but mostly recovered). Basically...

There are a number of clotting disorders which would not appear in normal blood tests. A thrombophilia screen would be necessary. One clotting disorder, but there are others, is factor v Leiden which I have, and which affects about 5% of the Caucasian population. I had not read of a link with...

https://livingwithchronicfatiguesyndrome.wordpress.com/2016/08/23/heparin-for-me/

Thanks @Luther. The self guided ones at the end have 'tings' so are to be avoided for my purposes but the others will increase my choice. Thank you. Perhaps a sitting meditation tonight. I'll need to check out the accents.

Having gone through this process, I agree that observing my thoughts without reacting to them was useful to learn. I can't often do it but it's an aim. What still annoys me though is that the mp3s have tings in the middle which go off just as I'm falling into beautiful sleep. I know the point...

I feel the same as @Keela Too having had an informal test by a cardiologist walking me round a hospital including one flight of stairs. My hr reached 140 and I was significantly worse for a year transferring to wheelchair use outside the house. Really totally bedbound for long spells. Last week...

I have just bought this for my daughter and grandchildren. We don't see them a lot because they live 100 miles from us. Since I deteriorated at the end of 2016, we have been unable to visit them. It's a nightmare journey around the M25, 26 and 20, and having to sit up combined with the...