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I was so ill I was frightened after the last car journey. It was a long drive to Cornwall from London but we split the journey halfway at Honiton. First day seemed ok. I went straight to bed when we got there - orthostatic intolerance is severe for me, and we had a meal brought in. Same distance...

Car travel has become impossible. Was ill ( unable to sit up without severe dizziness) for 2 weeks after my last car journey and had to fly home.

Research supporting yoga in ME. Scientists- is it any good? Have just seen that Colin Barton posted this on MEA fb page yesterday evening. https://bpsmedicine.biomedcentral.com/articles/10.1186/s13030-017-0090-z ETA:first line

Split from this thread Research supporting yoga in ME. Scientists- is it any good? Have just seen that Colin Barton posted this on MEA fb page yesterday evening. https://bpsmedicine.biomedcentral.com/articles/10.1186/s13030-017-0090-z ETA:first line

The MEA’s position is incomprehensible to me. How they can ‘advertise’ the Sussex group which promotes Pace style treatments, yet work with all the groups pushing for abolition of CBT and GET, both at the same time, is inconsistent. They cannot write to the Times about Fiona Watt’s statement...

Somehow can’t resist doing these things! Mine is advocate which might be of use around here especially as it’s very rare. And I’ ve lost the capacity to follow up on one quality. That’s an interesting slant on ME.

Not that I saw. There is a thread on PR from 2011 mentioning Pariente and an interferon study, also the CDC who were funding an interferon study too. https://forums.phoenixrising.me/index.php?threads/carmine-pariantes-mrc-research-award-persistent-fatigue-induced-by-interferon-alpha.13799/...

Great letter @Graham.

Just to say this makes no sense in my own condition. ‘Excessive rest ...needing a psychiatric framework’ I was beginning to think the proxy thing might have some value but not with the above as part of the package.

My family member who took interferon as treatment for a melanoma didn’t just feel ill. He was a very active hill walker, badminton player ( international and county), long distance runner but during that year was crashed as we are crashed. He recovered some after the interferon but never to his...

I have had a family member given interferon a for melanoma. He had the treatment for a year and felt utterly dreadful the whole time. Extreme flulike symptoms, nausea, severe fatigue. @Trish I don’t know if the fatigue had a pem aspect to it. I don’t remember that being talked about so possibly...

I agree but I also I wonder how they explain it to themselves. They are after all members of the “ helping professions”. Can they even allow themselves to know that they are damaging patients? When I reattended the Sutton hospital nhs clinic 2 years ago and was offered GET by the nurse, I...

Thank you to those on this thread. @AndyPandy @Wonko @alex3619 I am not diabetic but am heading in that direction, and after reading how difficult it is for you, I shall redouble my efforts to avoid it. Just as I got my blood test results there was publicity about the soup and shake diet that...

Yes, Thank you @Sasha I got them on the link you provided. That’s where I saw Nina Muirhead had proposed a postgrad cert in ME/cfs.

I believe that those who have been turned down heard on Monday.

Any chance of posting them for those of us who don’t tweet? ETA: Action for ME have posted some. If you scroll down a fair way, dr Muirhead’s are there. She wants a postgraduate certificate in ME/cfs.

Do you know when their names will be released? Can’t help thinking these will be a very important group.

@Hell..hath..no..fury... I take bisoprolol for high blood pressure and a heart condition. I also have tachycardia and it is really good for that. I feel calmer when my heart rate is lower. I did actually try to stop recently and change to a different bp medication but I really couldn’t manage...

So beautiful @Kalliope.

https://www.libdems.org.uk/scotland Just looking up to see if Scottish and Westminster Libdems ally themselves in any way. @Emsho - is the above link accurate as far as you know? Many congratulations. Great news.