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  1. Snowdrop

    Blog: Murky matters involving conflicts of interest

    So we're back to wouldn't it be great if critical thinking was taught in grade school. Some people manage to come by it naturally they are sceptics. Others need to have their optimism and enthusiasm tempered maybe.
  2. Snowdrop

    Michael Sharpe skewered by @JohntheJack on Twitter

    Yes, I believe that in order for his sense of self to remain in tact and healthy he is able like anyone to use language and concepts in a special way that can be reframed to continually mean the same thing (his original belief) but update the package as needed. So having people with ME in the...
  3. Snowdrop

    Not ME : One of Britain’s leading universities embroiled in major research scandal

    He's a Commander of the British Empire (CBE) I think the body responsible for handing out shiny gongs needs an office of Integrity to do due diligence. Kinda like a Devils Advocate.
  4. Snowdrop

    Omega 3 & omega 6 supplementation in ME/CFS - what's the situation?

    Hi @Sasha I know I started this thought so I hope someone more in the know steps up to confirm or deny this with more details because when I read it I found it to be an interesting finding. Sadly that small detail is all that (I think) I'm remembering. Information flows through me like water...
  5. Snowdrop

    Recommended by my vet

    I guess the Omega 6 thing is not a solid conclusion perhaps. Or alternatively said as; just because I remember something doesn't make it so. :unsure:
  6. Snowdrop

    Recommended by my vet

    Yes, it would be very welcome if our GP's would provide us with treatment options. On the other hand we are not a basically healthy but aging dog so not a real comparison. I read recently somewhere (sorry it's all vague except the conclusion I read) that I believe Ron Davis said that he found...
  7. Snowdrop

    Sweden stands up for open access – cancels agreement with Elsevier

    I am very interested in this topic but know utterly nothing. I would like to ask for anyone who can answer. Is there such a thing as a guideline for peer reviewers. And if there is not would such a (well thought out) guideline be of any use? I'm not thinking of boxes to tick but a statement...
  8. Snowdrop

    Blog: Murky matters involving conflicts of interest

    Yes, I see your point. So the problem needs a fix from a number of fronts then?
  9. Snowdrop

    Ideas For Marketing ME More Effectively...

    Yes all true. I think though that the difference we're seeing is in the numbers involved. There were/are very dedicated people who have been hacking away at the indifference and neglect of the ME community. I'd name names but I'd forget some no doubt. But however many there were they were...
  10. Snowdrop

    Blog: Murky matters involving conflicts of interest

    I know so little of this area but maybe a solution would be to have Statisticians as first line reviewers to review the technical aspects of a paper then the follow up (peer)reviewer would be required to bear in mind that first review of the strengths weaknesses and possible flaws of the methods...
  11. Snowdrop

    John Oliver (HBO) about media and science

    John Oliver knows how to nail it. I've seen this one before but worth watching again. At about the 14 min mark he makes some very good observations about why it matters when we play fast and loose with science. There can be some pretty big consequences.
  12. Snowdrop

    Blog: Clark Ellis, "Which heart rate monitor for ME/CFS?"

    Not sure I found the right thread but just wanted to pipe in that I was using a HRM-- a Garmin Vivo. It worked well for the very basic things I wanted from it but now after 18 months or so it seems the USB charging cable has died on me. Just providing the info for feedback on models.
  13. Snowdrop

    UK: Labour Party are asking "What would you like to ask Theresa May?"

    Perhaps pointing out that there is no controversy around ME. There is only contrived controversy from those who are heavily invested in not subscribing to reality. I get the feeling that ME (not exclusively but especially) in the UK is seen as controversial. And therefore no one is willing to...
  14. Snowdrop

    Janet Dafoe - The Whitney Plea

    I really don't think anyone here would censure such a gesture of reaching out to communicate as a private personal choice. Certainly that's not a good thing to do. It would horrify me. But in the context of using it as a universal or widely shared symbolic gesture I'd have to agree that...
  15. Snowdrop

    World ME Alliance, was previously IAFME: International Alliance for ME

    My brain does not function very well but I would have thought there would be a more clear way to express that if that's the case.
  16. Snowdrop

    World ME Alliance, was previously IAFME: International Alliance for ME

    I find this statement odd: Sitting at the heart of our international advocacy work is the ethical principle that access to biomedical care must not be restricted for anyone who has a significant possibility of needing it. It seems a bit overly cautious and slightly vague. I may simply have...
  17. Snowdrop

    A unifying theory for cognitive abnormalities in functional neurological disorders, Fibromyalgia and CFS (2018), Mark J Edwards et al.

    There's a certain irony when someone chooses a profession -- psychology -- where your everyday work is about attending to psychological matters and then you go on to accuse others of a psychological issue via over-attending to bodily sensations. One could accuse them of perhaps attending too...
  18. Snowdrop

    Prime Minister Trudeau apologizes

    I'm glad to hear you're still managing so far. The big effort near concluding. I'd like to add that although I cannot attend my daughter, it just worked out this way, arrives for a visit here on the 12th and she will wear a MillionsMissing t-shirt from her home in the UK to on the train then...
  19. Snowdrop

    Prime Minister Trudeau apologizes

    Thanks for this @ScottTriGuy I hope you take care of yourself though all this--you seem to have been quite busy of late. :hug:
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