Interesting reflections @Sly Saint! Had to think about that. My first reaction as a housebounder was that it's us at the severe end who get...
In New Zealand – different countries have different rules – if you only have haemochromatosis but are otherwise healthy your blood can be used as...
Especially since it's cheap and easy to do a basic screen. Most people here should have been tested for iron levels because uncontrolled...
From the paper: This is intriguing. Does anyone know what “concepts of Precision Medicine with appropriate statistical analysis” means, exactly?...
It's worth checking out the reference given for the circadian issues. Have only scanned it so far; it's a very long article but looks interesting...
I'm pleased somebody is trying to look at different onset patterns and course of the illness. However I'm dubious about the quality of the data...
That's my guess, too. I have periods when, for no identifiable reason whatsoever, I need to breathe faster than normal. At other times, like now,...
But there are members on this forum who endorse every word. I for one am putting my hand up.:emoji_hand_splayed: Thanks @Trish. Superbly...
There is an option for that, sort of. Do as @Barry suggested and tick "Other", then email them your opinion "Doctors need to understand the...
:emoji_thinking:Hmm... looks like this study would exclude all of us who experience PEM as a result of talking on the phone.
Thanks for the excellent suggestion, which I duly followed. This is what I emailed them as my explanation for choosing 'other' as one of my...
Highlighting this thread about the Australian NHMRC ME/CFS advisory committee draft report currently open to submissions – from anyone, not just...
Just giving this thread a bump. Only a little more than a month to go before the deadline. Submissions close 18 February 2019 (Australian time)....
Congratulations @Michiel Tack, you have produced the first severity scale that fits my condition and would have done so at any of the stages of ME...
Not about ME at all but some of the issues discussed could be interesting since IL-6 pops up in some ME studies. Looks at effects of exercise...
Don't worry @Hutan. No crying happened. In fact I couldn't help laughing at the the suggestion to consult my doctor. Please doctor, my reaction...
Actually, if I was less severe and if I happened to live near Massey I would register for the study out of curiosity, to get more detailed...
I'm speculating due to insufficient information but it looks like they're intending to do test 1 up to threshold to establish where the threshold...
The devil will be in the detail, for example it's not really clear what a “graded exercise test” is. Do they mean a gradually increased intensity...
@Hutan posted this online tool to assess reaction time in another thread: http://www.sleepdisordersflorida.com/pvt1.html#responseOut Just tried...
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