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We are working on that too and have previously awarded bursaries to students from QUB to attend IiME conferences plus currently liaising with Bateman Horne. Surveys from our previous events in QUB would indicate great enthusiasm to learn more about M.E...

Thank you for alerting me. We have this small survey from NICON. Had great discussions with Mental Health Champion Prof Siobhan O’Neill on the effects of disbelief, need for ME education, high suicide risk etc. She actually kept her promise to contact the charity afterwards to discuss further...

This event is different in that the HSC Clinical Education Centre are hosting the platform and advertising the webinars to healthcare providers on their website, https://cec.hscni.net/ A massive breakthrough for us compared to previous events.

Oh! That’s good to know yes will most certainly keep in touch as I’d like to share your work to our FB Pages and Website. Thank you.

Hi Paddy, I’ve just heard about your great work! Are you in N.I., do I know you? Sorry brain complete mush today but just had to hunt you out

Still in recovery so briefly David Systrom is an extremely helpful gent, nothing was any bother no matter what we asked him to do while in N.I. Before the presentations, I introduced him to the Chair of the Health & Social Board, Dr. Ian Clements and they chatted for ages. Dr. Clements has...

The sad thing is, I had read good and bad stories about LP but the desperation to get well overcame all reasoning.

Yes, I noticed that too. Phil Parker must have a little band of people he alerts to make positive and supportive comments on all ’ME recovery’ videos perhaps?

Yes that’s correct, ‘think only positive thoughts and speak only positive words with great enthusiasm’ if I remember rightly. They don’t actually say ‘fake it till you feel it’ but that’s the idea.

The advertised ‘3 day’ course is misleading, it’s actually 2days at 4 hours and 1day at 2 hours, so a total of 10 hours over 3 days. There’s minimum travel by taxi to the venue as the LP coach advises staying in a nearby hotel for your ‘life changing’ holiday.

Sorry I can’t get on here much, just replying when alerted elsewhere. Hope this helps “Telephone interview - minimum 20 patients - more if time and resources permit We are yet to work out selection but most likely and convenience sample Patients need to confirm a diagnose of ME - CFS by...

A 30 second spot during daytime TV is very affordable but what powerful message could be produced during such a short time? Approx picking out 1/6th of what you’ve produced? @Adam pwme http://thetvagency.com/tv-advertising-costs/

@Adam pwme , I’m considering using this during our N.I. September conference, would I have your permission to do so please? Do I need permission for CS clip also? I’m lost on rules and regulations on sharing YouTube videos as there’s so much conflicting information when I try to find out!

https://www.thedrum.com/news/2017/02/22/how-much-does-it-cost-advertise-uk-tv-heres-what-channel-4-itv-and-more-charge-slots I haven’t studied this just posting here in response to suggestion above and in case I forget.

That’s the best idea I’ve ever heard!

Thanks so much! Lots to consider here to hopefully attract an interest in ME research in N.I. if we get very, very lucky. HSC Research & Development Division helped fund our ‘First Do No Harm’ conference last September so they are aware of the many ME issues from information I had to supply in...

Excellent thanks so much please let me know when the transcript is completed as I don’t get on S4ME very much. We have the problem with the first slides fixed and will have DVDs and USBs shortly. The aim is to distribute to influential people and for further PACE educational events.

Yes I’m going to ask for his permission to livestream. I had to debate in my head if public live-streaming again was the ‘right’ thing to do by our loyal charity members, as up until now we have been providing this monthly livestream service to our house/bed bound members only. I now feel it...

Success I think. I spoke to the editor, he said the information was sent in a press release from Countryfile and their interest is only because it’s a child in N.I. He asked for a write up about tomorrow night and they will consider running it. Nigel the editor may benefit from a copy of your...

Brilliant email Sally. I may give the newspaper a ring too. What a damaging article, whatever the truth of the story is.