ME Advocates Ireland also insist on the international consensus criteria....
Interesting to see this small group in Valencia has done a few papers on ME. They have a GP working with them on the clinical side, Dr. Eva Martin...
Would they sell it to the researchers at reduced cost and not the wholesale price? It says Keytruda is $11,500 a dose.
Just putting this here in case useful tool for the researchers looking at DecodeME data. [MEDIA]...
Hi.. sadly zero effect on neuropathic itch or ME symptoms. The doctor was really expecting it to help with the itch, so it’s a pity.
Another biobank and registry.. https://www.metrodorainstitute.co/metxstudy Contribute to the Biobank Biofluids Solid tissue Pathology blocks...
SGB is quite an ordeal to go through for a person with ME, requiring day surgery procedure with sedation. The sedation and the SGB itself leave...
Yes. I used this tool to read synopsis of video and that’s the word. https://www.summarize.tech/
Another idea is Vitalik Buterin.. he has funded a lot of long Covid projects. Don’t know if he’d do anything for ME. His foundation — Balvi — says...
[MEDIA] Leora Horwitz: “Yes, PASC algorithm includes symptom severity; for ME/CFS we required reduction in overall function but not every symptom...
[MEDIA]
Chest aching and pressure was my first major symptom and lasted for first year of illness. I think it is often part of post-viral onset of...
Turned it off at the presentation on fatigue in long Covid by two people at Johns Hopkins. Basically a further effort preference study. So offensive.
@ME/CFS Skeptic This is the response from the o1 model, I’m not sure if the model o1-pro that Derya is using is different or more advanced......
Derya Unametz tweets a lot about using the o1 Pro model. He seems very impressed w it. [MEDIA]
I thought it did quite a good job in 6 seconds.. if treated as an information resource and ideating aide, not a cited published article. I’m not...
Below is an exploration of how some of the emerging mechanistic frameworks—both those already mentioned and a few additional ones—might...
Prompted Chat-gpt’s o1model to do some thinking around biological mechanisms in ME/CFS. Posting here to see if anyone finds anything new and...
Or by Vinod Khosla.. ask him on Twitter. He’s replied to me once before but is only online periodically. @Chris Ponting Maybe you could connect...
In Ireland, I don’t feel that many doctors believe it is psychosomatic — maybe other Irish residents will disagree with me. They just think we’re...
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