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Not to mention MUS.....

NHS England CEO Simon Stevens has accused, quite rightly, Gwyneth Paltrow's 'dubious wellness products and dodgy procedures' of being potentially damaging to health, as well as her Netflix series spreading misinformation and pseudoscience. Maybe he should take a look at his own organisation -...

I'm not sure that a lot of people outside the UK realise the extent of the damage to patients by SW and Co, although their ideas were exported abroad and patients in other countries abused by their own doctors and health services. ME has the most awful stigma because of them, even now. They...

If there is ever a public inquiry about ME these documents could be useful. They definitely need preserving as they document the appalling treatment of ME patients in this country over many years. Thank you so much Margaret Williams and Malcolm Hooper.

Great letter - thank you. I am looking forward to the response.

Norwegian M E Association have donated. Now past $90000!

I don't think there will be another matching pledge but I wonder if someone will make a large donation at the last minute to top up to $95000. Hope so!

No doubt they will consult the NICE guidelines and come up with the usual CBT/GET. Better off without the 'specialist services' that we have on the mainland.

I think the $5000 has just been reached.

It would be good if news of the matching grant could be put somewhere more prominent on the forum.

Today has not been a good day for donations - the total has only gone up a small amount. :(

Last year someone offered matched funding towards the end. Maybe the same will happen this year.

I didn't have to donate by Paypal.

Really delighted to contribute - thank you so much for all you have done for pwme.

The Countess of Mar as the Chair of Forward-ME threatened to report the SMC to the Charity Commission last year I think. It was to do with a so called "fact sheet on CFS/ME " that they had published. I don't know what happened as a result.

Talking to an opponent is a good thing though. To try to engage with them and get a point over. However I imagine they won't respond to the Countess.

I am always amazed at how few of the different charities attend the meetings. There is always a long list of apologies. Obviously not a priority for a lot of people. Charles Shepherd nearly always attends however. Not sure that M E has gone forward a lot in spite of their efforts.

Yes many many thanks for all your hard work.

Her treatment was paid for by an insurance company. Some ME patients who went there were funded by the ME Trust. Any doctors working there would still have to use NICE guidelines if they want to keep their registration.

Somebody I know was in Burrswood a few years ago after being very severely injured in a car crash. She was there for rehabilitation and had a lot of physio to get her moving again. Very caring people and a lovely place. I think they have done a lot of very good work. As far as their treatment...