Search results

Yes. Anyone else?

Based on his previous responses, I wonder if @profmsharpe has spoken to any non-PACE researchers and actually listened to what they had to say? It might be helpful. In any case, known bad and wrong methodology speaks for itself. There is not much to say, argue, nor defend about it. What is...

As if you're supposed to only research one possible treatment until it's been proven there are no positive effects? Then we should have only looked at bloodletting for every disease for the last couple centuries. Same mistake? So according to him, Time to look for other treatments = Unblinded...

Ideas for PACE... An article about a retracted research paper in nutrition science and an interesting bit about a professor of epidemiology at Emory using Twitter to crowdsource researchers' scrutiny of the republished paper. This Mediterranean diet study was hugely impactful. The science just...

Sorry, I had dropped off the course because of multiple illnesses. This will probably take me several sessions of the course to complete. So thanks to anyone who did manage to participate. Prof. Bruce Levin has now given a talk at Columbia, "How Not To Conduct A Randomized Clinical Trial"...

Great introduction post! I'm so glad someone who is a better writer than I am joined. :) I also want to know how bad studies can be removed from the literature. Participating in this course and putting PACE in front of some professors and instructors is just one of my ways of responding to those...

Excellent! This is a great idea for any university students taking courses on science research methods.

Oh, nothing to apologize for. That is a good point to keep in mind when reading responses. I looked at the course discussion forum today and while there is only a little activity, it is one forum for all sessions of the course which start every month, so a thread in the General Discussion area...

I am just going to address this one point for now before I have read the article. If we want hospitals and doctors to change their treatment of ME/CFS, we have to target changing their top information sources. From what I understand from doctors themselves, one of doctors' #1 goto is UpToDate...

Okay, I'll be happy if one doctor, research scientist, or public health administrator reads it. :) My own read/reply ratio in general is probably well over 100/1, so I think that few replies doesn't necessarily mean that people aren't reading, recalling and using what they read some time in the...

It might depend on the course. I have taken several Coursera courses from Stanford and other universities and there was good student interaction. The professors and teaching assistants answered questions and it was apparent that they were reading the forum even if they couldn't respond to...

Ron Davis said, “I would like to use it as a teaching tool, to have medical students read it and ask them, ‘How many things can you find wrong with this study?’” (https://www.statnews.com/2016/09/21/chronic-fatigue-syndrome-pace-trial/) This free online course on the Design and Interpretation...

@Lucibee What software did you use to make the charts? Thanks!

Has it been looked at how many people got worse, and by how much, compared by treatment? I have no spreadsheet skills at the moment so have only been able to see from a histogram of all participants that it looks like about 1/3 of participants had negative change in SF-36 physical functioning...

For those in the U.K. I came across this Web site and app similar to Benefit that looks pretty awesome. https://easyfundraising.org.uk/ Very informative Web site and you can earn on big items such as car and home insurance, TV, mobile, etc. Though it looks like ME nonprofits would need to be...

MEAction Network has been added to the Benefit fundraising app which donates 2-20% of your everyday shopping transactions at popular retailers to your cause. The average person in the U.S. can find several hundred to a thousand dollars extra to donate per year by using the Benefit app. The...

I contacted Benefit support and they said it is only available in the U.S. But I'll keep my eye out for programs that are available globally. The eScrip program (http://escrip.com) I mentioned in the other fundraising thread has on Online Mall with an even larger catalog of retailers. Their Web...

Did you try setting up the Benefit app already? I didn't find any information on their Web site about which countries their payment system accepts.

Continuing the momentum after May 12 and in honor of ME/CFS Awareness Month, let's help our researchers and non-profits do their work! Download the Benefit Mobile app (http://benefit-mobile.com) and use it at checkout for your everyday shopping, in-store and online, to support ME/CFS...

In honor of ME/CFS Awareness Month, here is an easy fundraising action item to donate up to 5% of your grocery shopping to ME/CFS nonprofits at no cost to you. This is mainly for residents of the San Francisco Bay Area, California, and some other states in the U.S. Sign-up at http://escrip.com...