Thanks for sharing the news about our upcoming webinar, @Andy!
If anyone has questions they would like the NIH to answer about this paper, please send them along! We are working closely with our NIH presenters to address community questions during the presentation. Please email your questions...
Hey everyone!
Thanks for helping us get the word out about the good news! I do not have information about the content or subjects of the specific awards funded. You can find the breakdown here:
https://cdmrp.army.mil/prmrp/pdfs/W81XWH-20-PRMRP-DA_Information%20Paper.pdf
and the list of funded...
If folks still have questions about HR 7057 - I'm hosting a townhall and created a Q&A
Solve M.E. Advocacy Director Emily Taylor Answers All Your Questions About H.R. 7057 in this Q&A and Town Hall!
Hi Solve M.E. Community!
In case we haven’t met before, my name is Emily Taylor, and I’m...
Solve M.E. Co-Sponsors Bipartisan Women’s Caucus Briefing with Two-time Emmy-nominated TV Host, Jedediah Bila
Solve M.E. is proud to announce our collaboration with the Bipartisan Women’s Caucus, Miles for Migraines, and the Headache and Migraine Policy Forum in hosting a virtual Congressional...
Tell Your Representative "SUPPORT INCREASED FUNDING FOR POST-VIRAL-DISEASE RESEARCH INTO ME/CFS!"
Thanks to your hard work during ME/CFS Advocacy Week, Representative Jaime Raskin (MD-08) introduced H.R. 7057, The Understanding COVID-19 Subsets and ME/CFS Act.
Ask your Representative to...
Hi all -
Just noting that the version of the bill that Raskin posted was the draft. It doesn't have a bill number. There were a number of technical corrections before the actual introduction
Rep. Raskin (MD-08) Introduces First Ever Legislation for ME/CFS Research Funding!
Solve M.E. is proud...
Congrats team! Great success - bi-partisan support from 12 members of congress!
https://www.markey.senate.gov/news/press-releases/senator-markey-leads-bipartisan-group-of-senate-colleagues-in-calling-for-me/cfs-medical-research-funding-in-upcoming-coronavirus-relief-package
Solve M.E. Announces Oved Amitay as President and Chief Executive Officer
Dear Emily,
With your support, Solve M.E. has taken our community to battle against ME/CFS. Your impassioned Calls-to-Action, your eagerness to engage with research and your participation in the You + M.E. Registry...
Tell Your Senator to SUPPORT INCREASED FUNDING FOR POST-VIRAL-DISEASE RESEARCH INTO ME/CFS!
Thanks to your hard work during ME/CFS Advocacy Week, the U.S. Senate is currently circulating our request to include ME/CFS research funding in the next COVID-19 package.
Ask your Senator to sign-on to...
Happy International ME/CFS Awareness week! Thank you again for being part of the largest ME/CFS Advocacy Day ever just three short weeks ago. Thanks to your voice, your advocacy, and your hard work, we’ve made big steps towards our goal of increasing federal funding for ME/CFS research. I wanted...
251 Meetings - That’s 47% of Congress!
Thanks to the hard work of our advocacy community, Solve ME/CFS Advocacy Day was a wild success!
Across the country you called for ME/CFS research funding, supporting a fast-moving $60m request! 358 registered advocates took part in 251 meetings...
Today is ME/CFS Advocacy Day!
Not participating in meetings? If you have a few minutes throughout the day, you can still support and advocate for ME/CFS. All three actions should take less than 30 minutes. You can space out the actions throughout the day to help manage your energy. You can...
2nd Annual EmPOWER M.E. Roundtable: Navigating Public and Private Disability Insurance with ME/CFS
We're less than a week away from the 2nd Annual EmPOWER M.E. Roundtable: Navigating Public and Private Disability Insurance with ME/CFS. Since we could not be there in person, we will bring...
Sign up TODAY for ME/CFS Congressional Meetings from Home
We are pleased to announce that Advocacy Day congressional meetings will STILL take place on Tuesday, April 21 by remote online and phone systems.
Who can participate? US Citizens and residents
What will we do? Phone...
Hello US Advocates!
If you are able, please email or call your representatives this evening or tomorrow morning to make sure they are aware of this request.
You can find your Representative's contact info at: https://www.house.gov/representatives/find-your-representative
Below is a sample...
Solve M.E. Announces 2020 ME/CFS Advocacy Week Virtual Transition in Response to COVID-19
Solve M.E. Advocacy Week activities this April in Washington, D.C., will be transitioning to entirely remote formats and our team will be cancelling in-person events to protect and preserve the health of...
Thank you for sharing this action, Andy! For Florida folks - here's a link to all the phone numbers of all the Florida congressional delegation:
https://floridahousedc.org/congressional-delegation/
whoops! My apologies, I should I have clarified in the title - this is the final report for FY20, which was signed into law on Dec. 20th.
Already getting started on FY21!
Dear Friends,
Throughout 2019, I reported on our advocacy gains for ME/CFS. Thank you for standing with me and our advocacy partners during a particularly turbulent year while we fought for ME/CFS in Washington D.C.
Today, with this final FY20 budget update, I’m so happy to report that our...
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