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  1. Emily Taylor

    Characterization of Post–exertional Malaise in Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (2020) Stussman, Nath et al.

    Thanks for sharing the news about our upcoming webinar, @Andy! If anyone has questions they would like the NIH to answer about this paper, please send them along! We are working closely with our NIH presenters to address community questions during the presentation. Please email your questions...
  2. Emily Taylor

    Solve ME/CFS: $547,000 Awarded from Defense Department for ME/CFS Research

    Hey everyone! Thanks for helping us get the word out about the good news! I do not have information about the content or subjects of the specific awards funded. You can find the breakdown here: https://cdmrp.army.mil/prmrp/pdfs/W81XWH-20-PRMRP-DA_Information%20Paper.pdf and the list of funded...
  3. Emily Taylor

    Tell Your Representative to SUPPORT INCREASED FUNDING FOR POST-VIRAL-DISEASE RESEARCH INTO ME/CFS!

    If folks still have questions about HR 7057 - I'm hosting a townhall and created a Q&A Solve M.E. Advocacy Director Emily Taylor Answers All Your Questions About H.R. 7057 in this Q&A and Town Hall! Hi Solve M.E. Community! In case we haven’t met before, my name is Emily Taylor, and I’m...
  4. Emily Taylor

    Announcing Congressional Women’s Caucus Briefing about ME/CFS

    Solve M.E. Co-Sponsors Bipartisan Women’s Caucus Briefing with Two-time Emmy-nominated TV Host, Jedediah Bila Solve M.E. is proud to announce our collaboration with the Bipartisan Women’s Caucus, Miles for Migraines, and the Headache and Migraine Policy Forum in hosting a virtual Congressional...
  5. Emily Taylor

    Tell Your Representative to SUPPORT INCREASED FUNDING FOR POST-VIRAL-DISEASE RESEARCH INTO ME/CFS!

    Tell Your Representative "SUPPORT INCREASED FUNDING FOR POST-VIRAL-DISEASE RESEARCH INTO ME/CFS!" Thanks to your hard work during ME/CFS Advocacy Week, Representative Jaime Raskin (MD-08) introduced H.R. 7057, The Understanding COVID-19 Subsets and ME/CFS Act. Ask your Representative to...
  6. Emily Taylor

    USA: Rep. Jamie Raskin introduces legislation to address potential rise in ME/CFS from COVID-19 pandemic

    Hi all - Just noting that the version of the bill that Raskin posted was the draft. It doesn't have a bill number. There were a number of technical corrections before the actual introduction Rep. Raskin (MD-08) Introduces First Ever Legislation for ME/CFS Research Funding! Solve M.E. is proud...
  7. Emily Taylor

    Senate Action! Deadline Monday May 25

    Congrats team! Great success - bi-partisan support from 12 members of congress! https://www.markey.senate.gov/news/press-releases/senator-markey-leads-bipartisan-group-of-senate-colleagues-in-calling-for-me/cfs-medical-research-funding-in-upcoming-coronavirus-relief-package
  8. Emily Taylor

    Solve M.E. Announces Oved Amitay as President and CEO

    Solve M.E. Announces Oved Amitay as President and Chief Executive Officer Dear Emily, With your support, Solve M.E. has taken our community to battle against ME/CFS. Your impassioned Calls-to-Action, your eagerness to engage with research and your participation in the You + M.E. Registry...
  9. Emily Taylor

    Senate Action! Deadline Monday May 25

    Tell Your Senator to SUPPORT INCREASED FUNDING FOR POST-VIRAL-DISEASE RESEARCH INTO ME/CFS! Thanks to your hard work during ME/CFS Advocacy Week, the U.S. Senate is currently circulating our request to include ME/CFS research funding in the next COVID-19 package. Ask your Senator to sign-on to...
  10. Emily Taylor

    US HOUSE action and COVID Leg package update

    Happy International ME/CFS Awareness week! Thank you again for being part of the largest ME/CFS Advocacy Day ever just three short weeks ago. Thanks to your voice, your advocacy, and your hard work, we’ve made big steps towards our goal of increasing federal funding for ME/CFS research. I wanted...
  11. Emily Taylor

    ME/CFS Advocacy Day 2020 Report

    251 Meetings - That’s 47% of Congress! Thanks to the hard work of our advocacy community, Solve ME/CFS Advocacy Day was a wild success! Across the country you called for ME/CFS research funding, supporting a fast-moving $60m request! 358 registered advocates took part in 251 meetings...
  12. Emily Taylor

    ME/CFS Advocacy Day is TODAY!

    Today is ME/CFS Advocacy Day! Not participating in meetings? If you have a few minutes throughout the day, you can still support and advocate for ME/CFS. All three actions should take less than 30 minutes. You can space out the actions throughout the day to help manage your energy. You can...
  13. Emily Taylor

    Solve webinar: Navigating Public and Private Disability Insurance with ME/CFS

    2nd Annual EmPOWER M.E. Roundtable: Navigating Public and Private Disability Insurance with ME/CFS We're less than a week away from the 2nd Annual EmPOWER M.E. Roundtable: Navigating Public and Private Disability Insurance with ME/CFS. Since we could not be there in person, we will bring...
  14. Emily Taylor

    Link for Remote ME/CFS Advocacy Day Registration (April 21)

    Sign up TODAY for ME/CFS Congressional Meetings from Home We are pleased to announce that Advocacy Day congressional meetings will STILL take place on Tuesday, April 21 by remote online and phone systems. Who can participate? US Citizens and residents What will we do? Phone...
  15. Emily Taylor

    URGENT ACTION - Labor-HHS requests deadline TOMORROW 12pm ET

    Hello US Advocates! If you are able, please email or call your representatives this evening or tomorrow morning to make sure they are aware of this request. You can find your Representative's contact info at: https://www.house.gov/representatives/find-your-representative Below is a sample...
  16. Emily Taylor

    COVID-19 Update: Solve ME/CFS Advocacy Week goes ONLINE!

    Solve M.E. Announces 2020 ME/CFS Advocacy Week Virtual Transition in Response to COVID-19 Solve M.E. Advocacy Week activities this April in Washington, D.C., will be transitioning to entirely remote formats and our team will be cancelling in-person events to protect and preserve the health of...
  17. Emily Taylor

    USA: ME/CFS Action for Florida - Feb 12th Deadline!

    Good news! Deadline has been extended to COB tomorrow. We've got 16 signed on already! More than halfway for the complete delegation!
  18. Emily Taylor

    USA: ME/CFS Action for Florida - Feb 12th Deadline!

    Thank you for sharing this action, Andy! For Florida folks - here's a link to all the phone numbers of all the Florida congressional delegation: https://floridahousedc.org/congressional-delegation/
  19. Emily Taylor

    Final US Federal Budget Report: Victory! 6 Major Federal Wins for ME/CFS

    whoops! My apologies, I should I have clarified in the title - this is the final report for FY20, which was signed into law on Dec. 20th. Already getting started on FY21!
  20. Emily Taylor

    Final US Federal Budget Report: Victory! 6 Major Federal Wins for ME/CFS

    Dear Friends, Throughout 2019, I reported on our advocacy gains for ME/CFS. Thank you for standing with me and our advocacy partners during a particularly turbulent year while we fought for ME/CFS in Washington D.C. Today, with this final FY20 budget update, I’m so happy to report that our...
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