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I became ill just over a year after getting married. I was still working, but it was a struggle. One lunch hour, a chiropractor and long-time family friend saw me and my husband walking outdoors during lunch hour. At my next appointment he said: "Anyone who can look at their husband that...

@MSEsperanza Many thanks for posting this article. It describes my situation perfectly. Last summer, with a sibling scheduled for by-pass surgery, my physician requisitioned a nuclear stress test. I was experiencing worsening symptoms of cardiac failure, and wanted to know if it was "just...

Here's an article by Julie Rehmeyer posted on today's LA Times website: Netflix is televising prejudice against the chronically ill http://www.latimes.com/opinion/op-ed/la-oe-rehmeyer-scientific-ethical-lapses-in-neflix-series-on-chronic-illness-20180917-story.html Also today, I believe, Ben...

https://www.dailydot.com/upstream/afflicted-series-netflix/ Oh dear! With articles like the above, viewers will have their opinions influenced before they even watch the docu-series. A few excerpts: In figuring out what’s psychosomatic and what isn’t, . . . Jamison, suffering from myalgic...

For me, the worst content on the CDC website is the section called "Voice of the Patient". https://www.cdc.gov/me-cfs/patient-stories/index.html Apart from the fictional tone of the patient narratives, it appears they were written to influence readers' interpretations of ME/CFS in a way that...

Yes, they might . . . but what you're suggesting seems to be a "damned if you do, damned if you don't" mindset. In this situation, there is no role for advocacy -- only the expectation that those on the other side of the argument will remain ignorant and ill-informed, possibly intentionally...

Just when I thought the narrative about ME and ME patients had turned a corner, along comes this "canard". Yikes, it's bad! https://www.forbes.com/sites/julianvigo/2018/06/27/resistance-to-science-and-technology/#2fd6be142bd4 "Science has been up for debate regarding many illnesses and issues...

Prevalence rates published in the linked article were obtained from The Canadian Community Health Survey (CCHS). It is a voluntary, self-reported telephone survey that covers a wide range of illnesses and behaviours that impact an individual's health. It is intended to capture statistics...

Next week, I have an appointment for the above test due to intermittent symptoms of heart failure post-ME, a family history of cardiac issues, and the recent scheduling for double by-pass surgery in a sibling. I believe my unstable blood pressure, extremely high heart rate and arrhythmias are...

Hi @JenB . Thanks for your update. I haven't donated yet this time (although probably will do so). Regarding this particular crowdfunding campaign, there are a few issues that have kept me from hitting the Donate button. First, as an "old fossil" I am careful regarding how many organizations...

@ladycatlover Oh, I love “Before and After” photos! What an amazing transformation — but all that scaffolding. That’s definitely something you don’t see very often in my part of Canada with our wood frame construction. I can see why you had to stay in your previous home while the work was...

@andypants Congratulations on finding a home outside the city. You’ll love it! There are many similarities in our circumstances regarding housing post-ME. We also purchased a “fixer-upper” — so bad our realtor tried to talk us out of it. Buying an unimproved place in a depressed market...

Justice, finally, for stricken Washington Post reporter by David Beard Here's a short article by a former colleague of Brian Vastag ( @B_V ) published on the Poynter website. Despite its brevity, there are enough links to provide details for the less-informed...

Crap for sure. The only characteristic listed under Type A personality that applies to me is a sense of urgency -- basically only when I need to push my body and brain to work faster than is comfortable in its current impaired state (i.e. to meet a deadline). Post-ME, I don't do deadlines...

I was among those with serious reservations regarding the content and possible misinterpretation of the “Whitney Plea” posted at the beginning of this thread. Yet, I think MEAction have created a moving piece of advocacy using portions of Janet’s original video together with content involving...

I'm not sure how readers will interpret this article. I started out feeling outraged, but on "second read" realized I initially misinterpreted some of the statements made. The article may offer "confirmation bias" for those already convinced that ME is a psychological illness. Yet, for those...

@JaimeS I haven't been able to find a still photo, but here's a link to a short video:

Perhaps this article demonstrates the value of @dave30th 's recent awareness-raising trip in Australia. To the #MillionsMissing with ME/CFS, something remarkable is happening...

@Medfeb Thanks. It appears I misunderstood the following sentence: "Our plan calls for significantly ramping up research funding to equal the disease burden, which studies approximate at $190 to $250 million." My interpretation was that the disease burden is $190 to $250 million -- not the...

I agree with many of the above comments. Viewing the video without Janet's explanation, I would interpret Whitney's gestures (demonstrated by Janet) as him pleading for help to die.