australia

https://mecfssa.org.au/news-events/current-sa-research SAHMRI Biomarkers for ME/CFS Study 2: 'Good Day/Bad Day' Study This research is a multidisciplinary approach to investigate ME/CFS which aims to take some blood, urine and faecal samples from 60 people (including 20 healthy controls)...

Clinical practice guide for assessment and management of adults withpost-acute sequelae of COVID-19 Guidance for NSW health clinicians https://aci.health.nsw.gov.au/__data/assets/pdf_file/0011/726878/ACI-CPG-for-assessment-and-management-of-adults-with-post-acute-sequelae-of-COVID-19.pdf...

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Full title: CLINICAL IMPROVEMENT IN PATIENTS WITH ME/CFS WITH SYNERGISTIC EFFECT OF COLCHICINE AND SPIRONOLACTONE TARGETING INHIBITION OF INFLAMMASOME ACTIVITY Dr Jorge do Campo1, Dr Vivienne Taylor2 1Noosa Hospital, Noosaville, Australia, 2Ibuki Medical Centre, Noosa, Australia Background...

"We are looking to submit this Australian version of the Call-For-Change petition to the current Australian Disability Royal Commission and Australian Parliament to investigate the violence, neglect, abuse and exploitation currently occurring in the ME and CFS community due to outdated...

Policy and institutional preparedness for the coronavirus disease 2019 (COVID-19) pandemic recovery is essential1 because the roots of the pandemic and its resolution are deeply systemic.2 The COVID-19 pandemic disproportionately affects certain groups and populations. Generally, they are...

Very PACE trial based information. eg" Adverse effects Surveys by patient groups of their members have suggested that GET may be harmful to some people with CFS. However, this finding is believed to be due to inappropriately planned or progressed exercise programs, possibly undertaken...

‘Faceless monster, secret society’: Women's experiences navigating the administrative burden of Australia's National Disability Insurance Scheme Abstract Previous research has indicated that administrative burdens are particularly high in personalised funding schemes such as the Australian...

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NCNED 2021 Conference Thread

Abstract The transient receptor potential (TRP) superfamily of ion channels is involved in the molecular mechanisms that mediate neuroimmune interactions and activities. Recent advancements in neuroimmunology have identified a role for TRP cation channels in several neuroimmune disorders...

Abstract (1) Background: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex, multifaceted illness. The pathomechanism, severity and progression of this illness is still being investigated. Stressors have been implicated in symptom exacerbation for ME/CFS, however, there is...

Abstract Sickness behavior including malaise, fatigue and increased pain sensitivity is thought to be adaptive and facilitate recovery from disease. However, it may also reduce functioning and health if symptoms persists, which is why validated instruments for its assessment are needed. We...

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Objectives(s): To characterise the clinical profile, aetiology and treatment responsiveness of ‘Australian Lyme’, or Debilitating Symptom Complexes Attributed to Ticks. Methods: Single-centre retrospective case analysis of patients referred to the Infectious Diseases Unit at Austin Health – a...

Health, Wellbeing, and Prognosis of Australian Adolescents with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): A Case-Controlled Follow-Up Study Abstract Background: The purpose of this study was to follow-up an Australian cohort of adolescents newly-diagnosed with ME/CFS at a...

Population based study: atopy and autoimmune diseases are associated with functional dyspepsia and irritable bowel syndrome, independent of psychological distress Summary Background The pathogenesis of functional GI disorders (FGIDs) is uncertain. However, underlying immune activation and...

Full title: A preliminary investigation of nutritional intake and supplement use in Australians with myalgic encephalomyelitis/chronic fatigue syndrome and the implications on health-related quality of life Background: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex...

Hello everybody. I hope I haven't breached any formatting requirements for this forum category! I also hope that it's okay for me to post this directly. In an effort to find more recruits (Melbourne, VIC, Australia) I'm sharing the pwME recruitment flyer for some current and future work here...

Preprint Abstract A proportion of patients surviving acute COVID-19 infection develop post-COVID syndrome (long COVID) encompassing physical and neuropsychiatric symptoms lasting longer than 12 weeks. Here we studied a prospective cohort of individuals with long COVID (the ADAPT study) compared...