A new research landscape emerges in America Things are changing in the US for ME/CFS research as four new collaboratives set up and get to work....
hi all, new blog post on the kafka pandemic. it is related to my 2016 open letter to francis collins....
Dr. Francis Collins, in answering a question about ME research on April 20th, said that NIH recognizes and empathizes with our suffering and our...
A brief article on the results of an effort to improve the quality of biomedical and life sciences research by improving reporting by scientists...
Women with lupus, fibromyalgia, chronic fatigue syndrome, and even Parkinson’s disease still typically face long periods of misdiagnosis,...
Glad to see our @Simon M launching his new blog! :thumbup: If I want to know what to make of the latest big science claim in ME/CFS research, I...
Derya Unatmaz of Jackson Laboratories explains the partnership between Bateman Horne Center, Jackson Laboratory, and many other collaborators as...
Not directly about ME but perhaps of interest, considering the subject matter. With the publication of his exhaustingly researched and skillfully...
Unrest, Jen Brea’s documentary about ME, will be shown on PBS stations around the United States on Monday night – January 8th. The film is already...
Two years have passed since I requested release of the PLOS One PACE data, eight months since the Expression of Concern was posted. What can we...
I didn't know where to put this, but thought it of interest. From a Bristol Uni magazine in 2013 an article by Esther Crawley. [ATTACH]...
My head would lift a bit, I could get part of a shoulder up, but even when I groaned with effort, my spine didn’t budge. My muscles weren’t...
There’s a very interesting discussion about wearable heart rate monitors on Science for ME. I’m not going to reproduce those discussions here but...
A first glance at the results of the “severely ill big data study” that was launched two years ago and that have been presented during the...
This year I’ve arranged for saline IV’s. As I have a hard time tolerating any medication, and I’m not improving enough because of it. Saline IV’s...
For such a high ranking Russell Group Institution, Bristol University seems to be getting its facts alarmingly confused. In response to Freedom of...
Reflecting, in part, on the impact of the news of the Rituximab null result. "I caught a glimpse of Hope standing naked. I was alarmed by the...
Moderator note: We've merged a number of threads to collect Naomi's blog posts into one thread. An article originally printed December 2016 but...
Can positivity cure any disease? As long as I have been suffering from my illness I’ve read and have also had some people tell me that the cause...
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