Africa Clockwise: M.E. Too or Why I am No Longer NOT Speaking to Doctors about Chronic Illness [MEDIA]
This is the second in a new series of posts about medically unexplained symptoms (MUS). The first of these, A Morass of MUS, appeared last time....
Today, we need to revisit and reconcile NIH’s funding numbers for FY 2017. NIH is reporting that it spent $15 million dollars on ME/CFS research...
In a Westminster Hall debate on ME treatment and research on 21 June 2018, Sir Henry Bellingham, MP for North West Norfolk, called for government...
Psychology, Neuroscience: Lacking in Individuality? In research on people, scientists are typically interested in the group data – the mean,...
NIH recently announced that it is forming a new Working Group on ME/CFS. The announcement is very low on specifics, but this Working Group has the...
I delivered these comments via telephone today at the CFS Advisory Committee meeting: My name is Jennifer Spotila. I will soon begin my 25th year...
As you are probably aware, here in the UK, NICE are currently engaged in the lengthy process of revising their guidelines for ME/CFS. The current...
Another article by Steve Topple using ME and PACE as illustrative of current government policy, Last year, the UN accused the Department for Work...
From the blog "A Chronic Voice", An Innocent Beginning If someone had predicted I would one day stop being a writer, I would have said ‘Wrong!’...
Let’s take a quiz. I have a letter that was sent on behalf of Dr. Francis Collins, Director of NIH, to a person with ME, and I want you to guess...
Merged thread Why Attributing 'Type A' Personalities to Myalgic Encephalomyelitis Needs to Stop "I recently had an experience with a relative...
It’s been almost a year since the CDC removed its recommendations for GET and CBT as treatments for ME/CFS (or CFS, or ME, or CFS/ME, or even SEID...
Sorry I’ve not been blogging recently. I put the blog to one side to concentrate on another project but I didn’t realise how long it would take....
TIME FOR A PROFESSIONAL RETHINK ON ME : Your heart is as important as your head - blog by Jane Colby In 1985 I was taken seriously and severely...
As some of you will know, I've had Myalgic Encephalomyelitis (M.E) for 28yrs, M.E is a chronic complex physical debilitating illness. I also have...
I don’t expect it is possible to adequately describe the experience of ME to someone who hasn’t experienced chronic illness disability. I do...
One for ME Awareness week There’s a yawning gap in ME/CFS research funding. Take action. When I got ME more than 20 years ago, I thought that...
Disabled activist, Stella Young recently wrote: ‘The social model tells us that we are far more disabled by inaccessible environments and hostile...
I’m exactly the same as anyone else who’s gathered up a lifetime of training and experience. I have a lot of skills. People come to me for advice....
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