The following posts have been moved from this thread.
Have just noticed this on AfME website:
https://www.actionforme.org.uk/news/me-research-hra-reviews-ethical-concerns/
@dave30th @Andy
and...
I thought it might be useful to get an overview of medical guidelines on ME/CFS that have been influenced by the Cochrane review on graded exercise therapy (GET).
I’m mostly interested in official government positions or influential medical authorities that have referred to the Cochrane review...
This is in the Journal of Medical Internet Research.
"All adult patients referred for the treatment of CFS could participate if the following criteria were met: (1) a physician had concluded that the patient suffered from severe and disabling fatigue not explained by a known somatic or...
Hardly a new paper, but I can't see this paper as a title on any existing thread.
It's interesting to read Wessely himself state that they found no evidence for CFS/ME patients having negative attitudes to psychiatry, nor for having a particular 'perfectionist personality':
Sci-hub link...
Service based comparison of group cognitive behavior therapy to waiting list control for chronic fatigue syndrome with regard to symptom reduction and positive psychological dimensions
Heald, Adrian PhDa,*; Barber, Louise PhDb; Jones, Helen Lyon PhDb; Farman, Sanam MDc; Walther, Andreas PhDd...
https://kclpure.kcl.ac.uk/portal/en/persons/tom-ingman(a757866b-0975-4c36-bf27-bdb480bd1e30).html
(can't find any more details on this)
see also:
https://www.ncbi.nlm.nih.gov/pubmed/26846611
eta: 2nd tweet seems to have been deleted (following retweet by DT)
here's a screen shot of the other one
Authors also include McCrone, Chalder and Moss-Morris.
Open access, https://www.thelancet.com/journals/langas/article/PIIS2468-1253(19)30243-2/fulltext
This post has been copied from a petitions thread; five following posts have been moved from that thread.
off topic/ fun fact: this trial once got funding by the EU https://www.ncbi.nlm.nih.gov/pubmed/18277062 :banghead: if I remember correctly 300 000 DM 150 000 € .
I've started this thread for discussions regarding the methodological issues and efficacy of the IAPT treatment model.
In particular the move to treat 'CFS/ME' as a MUS that can be referred for IAPT CBT/GET treatment is now highly relevant to the ME/CFS NICE guideline.
from Introduction
interesting, a nice twist perhaps(?) But will anyone use it? Cochrane seem to be going in the opposite direction.
full paper here
https://bmjopen.bmj.com/content/bmjopen/9/2/e024622.full.pdf
Not a recommendation. Although there has been something published recently by the same people running this trial I think this is something different, albeit related.
https://bepartofresearch.nihr.ac.uk/trial-details/trial-detail?trialId=2460&location=&distance=
(Mods, do what you will with this.)
This paper from 1998 is regularly cited in various papers as showing that the CFQ is a reliable measure for CFS research.
But read beyond the abstract..........
https://www.sciencedirect.com/science/article/abs/pii/S0022399998000221
so they were...
Article
https://www.sciencedirect.com/science/article/abs/pii/S1360859219301019
scihub :
http://sci-hub.tw/https://doi.org/10.1016/j.jbmt.2019.03.006#
eta: if you take away the psych analysis, these could be useful tests.
Hi, This is Lunarainbow’s mum. She is too ill to type now. I came across this survey and told her about it. She wanted me to post this to alert people. It looks like another bps survey to reiterate that ME is psychological illness. This survey has been posted on ME Support Facebook page by a...
Psychosocial research: still not acknowledging failings (unless you look beyond the abstract) - (original title of thread)
August 22, 2019
Quantifying the Association Between Psychotherapy Content and Clinical Outcomes Using Deep Learning
Really?
still only questionnaires, subjective...
Matcham, F., Ali, S., Irving, K., & Chalder, T. (2019). Psychological predictors of fatigue, work and social adjustment, and psychological distress in rheumatology outpatients: A short report. European Journal of Health Psychology, 26(1), 25-29.
https://psycnet.apa.org/record/2019-31300-004
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