The Mind-Body Syndrome Study by Daniel Maroti and Robert Johansson at Karolinska Institutet in Sweden is currently recruiting. (This is not a recommendation!)
It's an online treatment focused on emotions.
It's called "MBS-studien" in Swedish.
http://mbsstudien.se/
More info about Maroti's...
Journal of Adolescence
Volume 75, August 2019, Pages 123-129
https://www.sciencedirect.com/science/article/pii/S0140197119301289
again using this proxy CDF (chronic disabling fatigue).
Is this now a formal diagnosis?
Or are they maybe, finally, realising that CDF does not equate to ME or CFS...
Can You Reshape Your Brain's Response To Pain?
NPR article, June 10, 2019
A fibromyalgia patient's recovery story, and the therapy she tried was developed by Schubiner who thinks ME/CFS is a Psychophysiologic Disorder...
Nancy Klimas is a named author on this.
Paywall, https://www.sciencedirect.com/science/article/abs/pii/S0277953619303776
Sci hub, https://sci-hub.se/10.1016/j.socscimed.2019.112392
Moderator note:
A series of posts has been split from the thread 'Protocol - Persistent symptoms Reduction Intervention - A system change and evaluation PRINCE, 2015 onwards, Chalder Moss-Morris et al'
******
The software/hardware analogy is indeed nonsense and it invokes the same mind-body...
I was sure I'd seen this posted here, but now cannot see it.
They say "The early involvement of occupational health practitioners is recommended to maximize the chances of maintaining employment." - Not seen any good evidence for any intervention intended to improve employment outcomes for CFS...
White astounding us with his insight into ME.....
Paywall, https://onlinelibrary.wiley.com/doi/abs/10.1111/jep.13240
Sci hub, https://sci-hub.se/10.1111/jep.13240
Sandler, C; Llloyd, A Barry, B (2016), Fatigue Exacerbation by Interval or Continuous Exercise in Chronic Fatigue Syndrome, Medicine & Science in Sports & Exercise: October 2016 - Volume 48 - Issue 10 - p 1875–1885
doi: 10.1249/MSS.0000000000000983 /...
Have set this up on a thread on it's own (was previously on https://www.s4me.info/threads/mus-services-in-uk-and-other-mus-related-issues.8318/ )
University of Sheffield.
https://www.sheffield.ac.uk/scharr/sections/heds/mus/info...
[They do subgroup analyses comparing those with and without CFS]
https://www.tandfonline.com/doi/abs/10.1080/09638288.2019.1636315
Original Article
Conceptualizing the benefits of a group exercise program developed for those with chronic fatigue: a mixed methods clinical...
A study published as a letter, I'm confused.
Paywall, https://adc.bmj.com/content/early/2019/06/13/archdischild-2018-316720
Sci hub, https://sci-hub.se/10.1136/archdischild-2018-316720
Michael Sharpe breaks his retirement promise on ME/CFS and returns with this monstrosity, a blog for the BMJ (British Medical Journal)
He says ME/CFS is an illness but not a disease...
Mind, Medicine and Morals: A Tale of Two Illnesses...
How do you feel about the proposition:
The symptoms of chronic brucellosis are, when all traces of infection have disappeared, perpetuated by the psychosocial characteristics and vulnerabilities of the patient?
Let me run that by you again.
How do you feel about that same proposition knowing...
When chronic fatigue syndrome leads to mutism
For more on the conference see this thread:
https://www.s4me.info/threads/me-cfs-contributions-at-royal-college-of-paediatrics-and-child-health-conference-may-2019.9555/
Tea and cake: an opportunity for young people and their parents/guardians to eat cake and share ideas
For more on the conference see this thread:
https://www.s4me.info/threads/me-cfs-contributions-at-royal-college-of-paediatrics-and-child-health-conference-may-2019.9555/
Source: Archives of Disease in Childhood
Volume 104, Suppl 2
Date: May 2019
URL: https://adc.bmj.com/content/104/Suppl_2
Royal College of Paediatrics and Child Health
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Abstracts of the RCPCH Conference and exhibition 13–15 May 2019, ICC...
This post and the following ones have been moved from this thread.
I was just looking at this new paper from the author:
Measurements of Recovery and Predictors of Outcome in an Untreated Chronic Fatigue Syndrome Sample...
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