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  1. ME/CFS Skeptic

    Chronic fatigue self-management in primary care: a randomized trial (2013) Friedberg et al.

    I’ve been reading this 2013 study by Friedberg et al. Chronic fatigue self-management in primary care: a randomized trial. This isn’t a study of ME/CFS, but the paper claims that 39% of the 111 randomized participants did meet diagnostic criteria for CFS (Fukuda-criteria). I don’t think the...
  2. daftasabrush

    NICE guidelines: topic experts and the behind the scenes

    Some revelations about shenanigans at NICE - the IAPT team is in charge of the NICE guidelines for ME/CFS - as flagged up by Hope 4 Fibro & ME Northern Ireland - back in 2017!!! According to the IAPT webpage it's still listing the "CFS/ME" guideline as under their control - that's the...
  3. Sly Saint

    Protocol: Persistent physical symptoms reduction intervention: a system change and evaluation (PRINCE), 2015 onwards, Chalder, Moss-Morris, et al

    (Not sure exactly what these are, but results are due I think?) PRINCE Primary: Integrated GP Care for Persistent Physical Symptoms - a Feasibility & Cluster Randomised Controlled Trial (PRINCE Primary) Sponsor: King's College London Collaborator: South London and Maudsley NHS Foundation Trust...
  4. S

    UK: Social prescribing on the NHS (and possible implications for ME/CFS services)

    This thread has been created by merging several threads on social prescribing BBC News: More 'social prescribers' to ease pressure on GPs. 28.01.19 https://www.bbc.co.uk/news/health-46999922
  5. MeSci

    Psychological and demographic factors associated with fatigue and social adjustment in young people with severe CFS/ME (2018) Chalder et al

    An alarming-sounding study ("Fearful beliefs about activity could be targeted using cognitive-behavioural interventions.")! Source: Journal of Behavioral Medicine Preprint Date: January 25, 2019 URL: https://link.springer.com/article/10.1007/s10865-019-00010-x Psychological and demographic...
  6. Esther12

    Treating medically unexplained physical symptoms: Effective interventions are available (1997) Sharpe & Mayou

    This isn't of huge interest, but I thought I'd post up for newer members who might be interested in reading a short summary from Sharpe. I find it kind of amazing to see how confidently they asserted their views on the basis of such flimsy evidence. They talk of providing 'positive...
  7. Andy

    Increase in prefrontal cortical volume following cognitive behavioural therapy in patients with CFS, 2008, de Lange et al

    An old study but, as shown in this thread, https://s4me.info/threads/top-10-sc...f-citations-tweet-by-dr-mark-gutheridge.7461/, one of the most cited ME/CFS papers in the past 10 years, so thought it might be useful to have here. Open access at...
  8. Andy

    Obesity in adolescents with chronic fatigue syndrome: an observational study, 2016, Norris et al

    This has come up as a reference in a new study, so I thought I'd create a separate thread for it. Open access at https://adc.bmj.com/content/102/1/35
  9. Cheshire

    'Widespread and dangerous': Facing medical uncertainty, some doctors tell patients it's all in their heads CNN

    https://edition.cnn.com/2018/12/21/health/medical-uncertainty-diagnosis-afm/index.html
  10. MeSci

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    Not sure whether this is really relevant, but the reference to kynurenine looked interesting. NB participants include some dodgy people, e.g. Trudie Chalder. Source: University of Essex (or Sussex?) Date: November 29, 2018 URL: http://sro.sussex.ac.uk/80506/ Persistent fatigue induced by...
  11. JaimeS

    A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al

    Here's a weird one: A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up. https://www.frontiersin.org/articles/10.3389/fpsyt.2018.00720/abstract These people seem to be implying that four days of CBT will fix your "CFS/ME"...
  12. Andy

    Bodily distress syndrome: Concerns about scientific credibility in research and implementation, 2018, O'Leary

    Saw this linked to on Facebook. Full paper available at https://docs.wixstatic.com/ugd/23f4ba_ae3ffbf6ff614c669f1e6ad9420a2dc9.pdf I'm puzzled about where this was actually published. In the document linked to above it says On what appears to be the website of the Journal of Biological...
  13. Sly Saint

    2014 Impact case study - Queen Mary University of London (QMUL) - CFS

    Didn't know where to post this or if it has been posted before; https://www.qmul.ac.uk/wolfson/media/wolfson/ref-2014-results/UoA2-chronic_fatigue_syndrome.pdf We have so much to thank QMUL for
  14. Sly Saint

    Children's pain: we can make it better? - featuring J. Bond-Kendall

    https://www.csp.org.uk/frontline/article/childrens-pain-we-can-make-it-better links to FITNET another of NICE guidelines committee members.
  15. Sly Saint

    The prevalence and treatment of health anxiety in Chronic Fatigue Syndrome (CFS) - Jo Daniels 2018

    Presentation (PDF Available) · July 2018 with 37 Reads DOI: 10.13140/RG.2.2.29883.52009 British Association of Behavioural and Cognitive Psychotherapy, DOI:10.13140/RG.2.2.29883.52009...
  16. Esther12

    The IAPT Pathway for People with Long-term Physical Health Conditions and MUS. Full implementation guidance.

    "The Improving Access to Psychological Therapies (IAPT) Pathway for People with Long-term Physical Health Conditions and Medically Unexplained Symptoms. Full implementation guidance"...
  17. Sly Saint

    The Efficacy of Metacognitive Therapy: A Systematic Review and Meta-Analysis -Normann & Morina (2018) (Jo Daniels likes it)

    yet another psychotherapy: "A large proportion of the identified studies treated patients suffering from anxiety and depression (see Table 1). There were eight trials on depressive disorders. Of these, seven were on major depressive disorder, whereas one study also included a small proportion...
  18. MeSci

    Effects of activity pacing in patients with chronic conditions associated with fatigue complaints: A meta-analysis (2018) Hettinga et al.

    Source: Disability and Rehabilitation Preprint Date: November 18, 2018 URL: https://www.tandfonline.com/doi/abs/10.1080/09638288.2018.1504994 Effects of activity pacing in patients with chronic conditions associated with fatigue complaints: A meta-analysis...
  19. BeautifulDay

    2016 Psychology Today article discusses overcoming CFS through dealing with stressful situations from past.

    How do we educate all the doctors who believe ME/CFS is psychosomatic? In this Psychology Today article from 2016 "Explaining the Unexplainable: Chronic Fatigue Syndrome", Howard Schubiner M.D. states that: "It is my opinion, and the opinion of a group of physicians and mental health...
  20. Esther12

    Adolescent and parent factors related to fatigue in paediatric multiple sclerosis and CFS: A comparative study (2019) Carroll, Chalder, Moss-Morris

    The abstract made it sound like another study that tries to confuse association and causation where their data didn't really support their narrative, but I stopped reading before getting to their results... too many infuriating unfounded claims to read before bed in just the intro. Funded by MS...
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