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  1. J

    Article by Paul Worthley

    This was apparently in the @Action for M.E. journal earlier this year. https://www.metrust.org.uk/2018/07/06/article-by-dr-paul-worthley-in-interaction-magazine/ I don't know anything about Worthley or the ME Trust, though I see Countess of Mar is a Patron. It reads to me as very similar to...
  2. Andy

    Are ME/CFS Patient Organizations “Militant”?, 2018, Blease and Geraghty

    Paywalled at https://link.springer.com/article/10.1007/s11673-018-9866-5
  3. Sly Saint

    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

    https://bmjopen.bmj.com/content/6/7/e011255 " Study design This study started in September 2015 and recruitment is expected to finish in August 2016. This is a feasibility RCT with integrated qualitative methods." " Ethical considerations GET, CBT and activity management are recommended as...
  4. Cheshire

    ME/CFS and the biopsychosocial model: a review of patient harm and distress in the medical encounter - Geraghty et al. 2018

    https://www.tandfonline.com/doi/abs/10.1080/09638288.2018.1481149?journalCode=idre20
  5. mango

    The prevalence and impact of psychoneuroimmunological factors in ME/CFS: Effects and mechanisms of ACT (2019) Olsson et al.

    These posts have been moved from this thread: Sweden: ACT for ME/CFS - an Open Case Trial This is from the ethical approval application document. It says, roughly translated: "Treatment The aim of the treament is to get the participants to return to an active life, which means to gradually...
  6. Sly Saint

    Sweden: Acceptance & Commitment Therapy for ME/CFS – A feasibility study, 2019, Jonsjö et al

    " Summary The goal of this research project is to evaluate if our well-researched behavior medicine treatment model for chronic pain, based on Acceptance and Commitment Therapy, is safe and effective in increasing quality of life and functioning also in Myalgic Encephalomyelitis/Chronic Fatigue...
  7. Sly Saint

    ACTIB trial (Assessing Cognitive behavioural Therapy in Irritable Bowel): a multicentre randomised controlled trial, 2015, Chalder et al

    From 2015 but to be presented in a talk in July at the Society for Academic Primary Care conference: https://sapc.ac.uk/conference/2018 https://sapc.ac.uk/conference/2018/abstract/actib-trial-assessing-cognitive-behavioural-therapy-irritable-bowel one of the co-authors is Susan Windgassen...
  8. Sly Saint

    Personality as a risk factor for ME/CFS and similar diseases

    Merged thread Why Attributing 'Type A' Personalities to Myalgic Encephalomyelitis Needs to Stop "I recently had an experience with a relative that caught me off guard. In passing, she mentioned reading somewhere that it’s mostly “type A” individuals who develop ME (myalgic encephalomyelitis)...
  9. adambeyoncelowe

    Chronic pain is not a disease (Psychology Today, 27 May 2018)

    While I may agree that unproven symptoms count as syndromes or illnesses, rather than specific diseases, the number of assumptions and false ideas in this article is appalling: Link: https://www.psychologytoday.com/gb/blog/patient-zero/201805/chronic-pain-is-not-disease Firstly, brain changes...
  10. Andy

    Current treatment approaches for paediatric CFS/ME, 2017, Loades, Bridgen and Crawley

    If you really want to, the rest can be read at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5939995/
  11. Andy

    Poor self‐reported sleep quality and health‐related quality of life, 2018, Castro-Marrero

    Paywalled at https://onlinelibrary.wiley.com/doi/full/10.1111/jsr.12703
  12. Andy

    Patients with chronic fatigue syndrome do not score higher on the autism‐spectrum quotient than healthy controls, 2018, Bileviciute‐Ljungar et al

    Paywalled at https://onlinelibrary.wiley.com/doi/full/10.1111/sjop.12451
  13. Dolphin

    Couple-based stress management intervention and Chronic Fatigue Syndrome (CFS) biopsychological processes

    Ph.D. Thesis Milrad Via Dr. Marc-Alexander Fluks Source: Univerity of Miami Date: May 3, 2018 URL: https://scholarlyrepository.miami.edu/oa_dissertations/2049/ https://scholarlyrepository.miami.edu/cgi/viewcontent.cgi?article=3081&context=oa_dissertations Couple-based stress...
  14. adambeyoncelowe

    A unifying theory for cognitive abnormalities in functional neurological disorders, Fibromyalgia and CFS (2018), Mark J Edwards et al.

    http://jnnp.bmj.com/content/early/2018/05/06/jnnp-2017-317823 I'm not sure if this is the 'biomedical research' MRC claimed to be funding: http://gtr.ukri.org/projects?ref=MR/M02363X/1 They're similar but not identical. Perhaps an early spin-off? They like to make a meal from bad research...
  15. Indigophoton

    (Not a recommendation) Bath University, Volunteer for research investigating Chronic Fatigue Syndrome

    This is Bath Dept.of Psychology. The supervisor is Jo Daniels, research interests, Metacognitions and symptom severity in COPD Emergency Dept frequent attenders Early Intervention in fatigue Health anxiety in Chronic Fatigue Syndrome/ME Pain in Chronic Fatigue Syndrome/ME Fibromyalgia...
  16. Indigophoton

    The biopsychosocial model

    Lancet 'Insight': In defence of the biopsychosocial model A short piece. It's not much of a defence. (emphasis added) If only. I liked that bit. http://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(18)30165-2/fulltext
  17. Indigophoton

    (Not a recommendation) Neurasthenia Revisited: On Medically Unexplained Syndromes and the Value of Hermeneutic Medicine, Aho, 2018

    I haven't looked at this yet. @Tom Kindlon posted it on twitter with the observation that it looks annoying... http://jah.journalhosting.ucalgary.ca/jah/index.php/jah/article/view/174 Link to pdf of full text, http://jah.journalhosting.ucalgary.ca/jah/index.php/jah/article/view/174/pdf
  18. Sly Saint

    Symptoms of chronic fatigue syndrome/myalgic encephalopathy are not determined by activity pacing when measured by the chronic pain coping inventory.

    Physiotherapy. 2018 Mar;104(1):129-135. doi: 10.1016/j.physio.2017.07.005. Epub 2017 Aug 4. Symptoms of chronic fatigue syndrome/myalgic encephalopathy are not determined by activity pacing when measured by the chronic pain coping inventory. Thompson DP1, Antcliff D2, Woby SR3...
  19. Kalliope

    Systemic exertion intolerance disease diagnostic criteria applied on an adolescent chronic fatigue syndrome cohort - Wyller et al (2018)

    BMJ Paediatrics open: Systemic exertion intolerance disease diagnostic criteria applied on an adolescent chronic fatigue syndrome cohort: evaluation of subgroup differences and prognostic utility Objective Existing case definitions for chronic fatigue syndrome (CFS) all have disputed validity...
  20. Indigophoton

    Graded exercise self-help for chronic fatigue syndrome in GETSET, Twisk, 2018

    I don't think this has been posted yet - by @FrankTwisk, http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(18)30673-1/abstract
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