cfsac

  1. adrienne

    FOIA denied CFSAC dissolution 2018/56 responsive records

    Writing for some advice/guidance on pursuing an appeal of a rejected FOIA request for information on the dissolution of the Chronic Fatigue Syndrome Advisory Committee/CFSAC in September 2018. I’m including some background links for context as well as the denial letter...
  2. R

    Project Echo: for ME/CFS

    Does anyone know the status of the proposed ME/CFS Project Echo that was discussed at the June 2018 Chronic Fatigue Syndrome Advisory Committee (CFSAC) meeting? The Project Echo model is... Their website: https://echo.unm.edu/ Example condition partner website...
  3. Andy

    Solve ME/CFS Initiative: "Congress to HHS: What's replacing CFSAC?" [easy form to fill in to contact your reps]

    https://solvecfs.secure.force.com/actions/kwac__takeaction?actionId=AR00042&cid=
    • Andy
    • Thread
    • #meaction cfsac congress massachusetts me/cfs & fm association solve mecfs initiative
    • Replies: 8
    • Forum: Advocacy Action Alerts
  4. M

    CFSAC charter has not been renewed. Solve, #MEAction and Occupy ME all call for action.

    Moderator note: This thread combines all threads on the CFSAC closure to save confusion and duplicate discussions. It includes links to information and calls for action from Solve, #MEAction and Jennie Spotila's Occupy ME blog. The US CFSAC operates under a charter which was up for renewal...
  5. MeSci

    Report from CFSAC, June 20-21, 2018

    (Don't ask me anything - I just got this in my Inbox!) Report CFSAC 21-22 june 2018, https://www.hhs.gov/ash/advisory-committees/cfsac/meetings/2018-06-20/ Where... * June 20 - Audio Recording https://www.hhs.gov/sites/default/files/lg/2018-06-20-cfsac-meeting-audio-day-1.mp3 - Transcript...
  6. Andy

    MEAction: Testimonies to June 2018 CFSAC meeting

    Mother Shares Heartbreaking Testimony about Sons with Severe ME https://www.meaction.net/2018/06/25/mother-shares-heartbreaking-testimony-about-sons-with-severe-me/
  7. Andy

    Blog: Occupy ME: Public Comment on Engaging People with ME

    http://occupyme.net/2018/06/20/public-comment-on-engaging-people-with-me/
  8. MeSci

    Meeting of the US CFS Advisory Committee June 20th and 21st 2018

    Source: U.S. Federal Register Vol. 83, #90, pp 21300 Date: May 9, 2018 URL: https://www.federalregister.gov/documents/2018/05/09/2018-09844/meeting-of-the-chronic-fatigue-syndrome-advisory-committee https://www.gpo.gov/fdsys/pkg/FR-2018-05-09/pdf/2018-09844.pdf [A Notice by the Health and...
  9. Melanie

    I support Carol Head for CFSAC! - Solve ME/CFS Initiative

    Carol Head is applying for a voting member position on CFSAC and posted a Twitter message that we can sign the letter through a form on their website. https://solvecfs.secure.force.com/actions/kwac__takeaction?actionId=AR00031
  10. Sasha

    20/21 June 2018 | Next CFSAC meeting (webinar)

    https://twitter.com/TomKindlon/status/967444649790058496
  11. T

    Some extracts from the public testimony to the December US CFSAC meeting in December 2017

    https://www.meaction.net/2018/01/15/the-public-testifies-about-me
  12. Andy

    US Chronic Fatigue Syndrome Advisory Committee meeting December 2017 YouTube playlist

    Day one, part one is linked below and is the first video in the playlist covering the two day meeting.
  13. Sasha

    Dec 13-14, 2017 | US Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting

    Edit: Deadline for registering to submit a comment is Monday, 27 Nov. https://twitter.com/TomKindlon/status/934257699763695618 Read the whole thing at: https://s3.amazonaws.com/public-inspection.federalregister.gov/2017-25550.pdf
Back
Top