congress

  1. ahimsa

    USA: From Solve ME - Educate your Members of Congress about a "HOME" for IACCIs at NIH

    Solve ME has created an automated tool (meant for folks in the USA) that will contact your Member of Congress (email/phone/twitter) and ask them to support a new "home" for "Infection-Associated Chronic Conditions and Illnesses" (IACCIs). Text part of the automated tool: There's another...
  2. ahimsa

    USA: Ask your Members of Congress to support the CARE for Long COVID Act! (from Solve M.E.)

    From Solve M.E. - a call to action for Advocacy Week: "Ask your Members of Congress to support the CARE for Long COVID Act!" https://p2a.co/Xpr5nVf This link goes to a form that sends an email to your government officials with one click. If you like you can modify their sample message before...
  3. Andy

    10 ME/CFS Organizations Join Solve M.E.’s Letter to Congress Recommending Priorities for Federal COVID-19 Relief Package

    From an email from Solve. Last month, Solve M.E. identified yet another COVID-19 relief package funding opportunity for ME/CFS and worked with our friends on Capitol Hill to outline additional federal post-viral research and medical education investments. Ten other ME/CFS organizations joined...
  4. ahimsa

    USA: Rep. Jamie Raskin introduces legislation to address potential rise in ME/CFS from COVID-19 pandemic

    Raskin Introduces Legislation to Address America’s Hidden Health Crisis
  5. rvallee

    Congressman Jack Bergman becomes Champion for ME

    https://www.meaction.net/2019/06/14/congressman-jack-bergman-becomes-champion-for-me/ Always good to thank those fighting for us. They are rare and appreciation always leads to more advocacy.
  6. ahimsa

    USA: ME/CFS Advocacy Week - Call or email your senators

    Most of us are not able to go to Washington, DC for this advocacy week. But there are still ways to make your voices heard! Today I called both of my senators and then tweeted about it: https://twitter.com/ahimsa_pdx/status/1113509333101187073...
  7. Andy

    Solve ME/CFS Initiative: "Congress to HHS: What's replacing CFSAC?" [easy form to fill in to contact your reps]

    https://solvecfs.secure.force.com/actions/kwac__takeaction?actionId=AR00042&cid=
  8. ahimsa

    USA advocacy: Ask Congress to sign letter to HHS - NEW deadline Dec. 12

    I got an alert via email a couple days ago requesting folks in the USA to contact their congressional representatives. Signature deadline has been extended (again) to Wednesday, December 12 Email text: Here's the link I found on the ME Action website...
  9. Webdog

    Senate Committee Advances Funding for Lupus Research

    https://www.lupus.org/general-news/entry/senate-committee-advances-funding-for-lupus-research
  10. Samuel

    NIH reply to my open letter to Francis Collins [The Kafka Pandemic]

    hi all, new blog post on the kafka pandemic. it is related to my 2016 open letter to francis collins. http://thekafkapandemic.blogspot.com/2018/04/nih-reply-to-my-open-letter-and-legal_24.html many nih employees will read it, so comments on the blog itself might be useful in getting across...
  11. Webdog

    Llewellyn King: "Congress to Hear From an Army of Very Sick Petitioners"

    http://www.insidesources.com/congress-hear-army-sick-petitioners/
  12. Andy

    Solve ME/CFS: "Tell Congress To Give ME/CFS Research a Fighting Chance!"

    https://solvecfs.secure.force.com/actions/kwac__takeaction
  13. ahimsa

    Massachussetts Congressional Delegation made statement at Boston showing of Unrest film

    I just saw this from ME Action on twitter (@MEActNet): https://twitter.com/MEActNet/status/930222000966176768 The statement is in an image attached to the tweet so it may be hard to read by some. Here's the text from the image: "Without meaningful and immediate investments in biomedical...
  14. MsUnderstood

    US Mass. Congress Supports ME Biomedical Research

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