Solve ME has created an automated tool (meant for folks in the USA) that will contact your Member of Congress (email/phone/twitter) and ask them to support a new "home" for "Infection-Associated Chronic Conditions and Illnesses" (IACCIs).
Text part of the automated tool:
There's another...
From Solve M.E. - a call to action for Advocacy Week:
"Ask your Members of Congress to support the CARE for Long COVID Act!"
https://p2a.co/Xpr5nVf
This link goes to a form that sends an email to your government officials with one click.
If you like you can modify their sample message before...
From an email from Solve.
Last month, Solve M.E. identified yet another COVID-19 relief package funding opportunity for ME/CFS and worked with our friends on Capitol Hill to outline additional federal post-viral research and medical education investments.
Ten other ME/CFS organizations joined...
https://www.meaction.net/2019/06/14/congressman-jack-bergman-becomes-champion-for-me/
Always good to thank those fighting for us. They are rare and appreciation always leads to more advocacy.
Most of us are not able to go to Washington, DC for this advocacy week. But there are still ways to make your voices heard!
Today I called both of my senators and then tweeted about it:
https://twitter.com/ahimsa_pdx/status/1113509333101187073...
I got an alert via email a couple days ago requesting folks in the USA to contact their congressional representatives.
Signature deadline has been extended (again) to Wednesday, December 12
Email text:
Here's the link I found on the ME Action website...
hi all,
new blog post on the kafka pandemic. it is related to my 2016 open letter to francis collins.
http://thekafkapandemic.blogspot.com/2018/04/nih-reply-to-my-open-letter-and-legal_24.html
many nih employees will read it, so comments on the blog itself might be useful in getting across...
I just saw this from ME Action on twitter (@MEActNet):
https://twitter.com/MEActNet/status/930222000966176768
The statement is in an image attached to the tweet so it may be hard to read by some. Here's the text from the image:
"Without meaningful and immediate investments in biomedical...
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