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discussion thread

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  1. AliceLily
    Thread

    Why does it take years to move down a level of ME?

    Is this more likely due to an immune system problem? For me there came a point where after many years with very severe ME where resting finally...
    Thread by: AliceLily, Jul 26, 2021, 17 replies, in forum: Post-Exertional malaise and fatigue
  2. Snow Leopard
    Thread

    Long term symptoms after Guillain Barré syndrome - relevance to ME/CFS

    Abstract Introduction: Reports regarding outcome of Guillain-Barré syndrome (GBS) are usually limited to relatively short follow-up. We assessed...
    Thread by: Snow Leopard, Jun 24, 2021, 3 replies, in forum: Neurological diseases
  3. ME/CFS Skeptic
    Thread

    Interventions that manipulate how patients report symptoms as a separate form of bias

    When we discuss the problems with trials on cognitive behavioral therapy (CBT) and graded exercise therapy (GET) we usually mention things like...
    Thread by: ME/CFS Skeptic, Jun 22, 2021, 101 replies, in forum: Trial design including bias, placebo effect
  4. Jacob Richter
    Thread

    Availability and usefulness of peripheral nervous system tests

    Hi everyone, I’m keen to know if any forum members have knowledge – or personal experience – of the role of peripheral nervous system tests in...
    Thread by: Jacob Richter, Jun 18, 2021, 12 replies, in forum: Laboratory and genetic testing, medical imaging
  5. alex3619
    Thread

    The IDO2 tryptophan trap hypothesis

    There are some issues and concerns around the IDO2 tryptophan trap hypothesis about ME. These are my current thought directions, and should not be...
    Thread by: alex3619, Jun 14, 2021, 7 replies, in forum: ME/CFS research news
  6. MSEsperanza
    Thread

    Trials on therapist-delivered treatments (for illnesses or symptoms that don't have biomarkers yet) that used objective outcomes as primary endpoints

    As the title indicates. Looking for examples of such trials. Systematic reviews (*) of trials that excluded (or downgraded to very low quality)...
    Thread by: MSEsperanza, Jun 6, 2021, 24 replies, in forum: Other research methodology topics
  7. Simon M
    Thread

    Possible chronic viral infection in ME/CFS (& other illnesses inc Long covid). Discussion.

    The possibility of ME/CFS being caused by a chronic viral (or other) infection – for at least some people — has been discussed for a long time....
    Thread by: Simon M, May 31, 2021, 61 replies, in forum: ME/CFS research news
  8. Midnattsol
    Thread

    Can dieticians (dietitians) help with ME/CFS?

    Posts moved from NICE ME/CFS guideline - draft published for consultation - 10th November 2020 I’ve only just realised that in the guidelines it...
    Thread by: Midnattsol, May 14, 2021, 15 replies, in forum: General clinical care
  9. Simon M
    Thread

    Participation bias

    Split from The course of the illness for ME patients in Norway, 2021, Schei and Angelsen The potential effect of sample biases on DecodeME...
    Thread by: Simon M, Mar 15, 2021, 2 replies, in forum: Trial design including bias, placebo effect
  10. Lidia Thompson
    Thread

    Antivirals as ME/CFS or Long Covid treatments (e.g. valacyclovir, valgancyclovir)

    Split from Mail Online: Why many of those struck by Long Covid may be suffering from glandular fever: Blood tests on some patients are coming...
    Thread by: Lidia Thompson, Mar 15, 2021, 14 replies, in forum: Drug and supplement treatments
  11. Jonathan Edwards
    Thread

    Who Agrees That GRADE is (a) unjustified in theory and (b) wrong in practice?

    The idea of GRADE to provide a recipe for making decisions for people who are not themselves capable of making such decisions on their own is a...
    Thread by: Jonathan Edwards, Mar 4, 2021, 146 replies, in forum: Other research methodology topics
  12. Dolphin
    Thread

    Is there good evidence that ME/whatever after an enteroviral infection is very different to states after other infections?

    Some people insist ME can only follow from an enterovirus; there are other post viral/infectious sequelae but they are distinctly different and...
    Thread by: Dolphin, Feb 26, 2021, 6 replies, in forum: ME/CFS research news
  13. Dolphin
    Thread

    The influence of the biopsychosocial (BPS) view of ME/CFS in government guidelines and medical practice in different countries (past and present)

    This thread has been split from a thread discussing a book about Ron Davis: The Puzzle Solver by Tracie White I've been following ME/CFS...
    Thread by: Dolphin, Feb 21, 2021, 32 replies, in forum: General ME/CFS news
  14. Suffolkres
    Thread

    Gulf War Illness - causes

    Dr. Komaroff (in 2018) briefly discusses the 2017 paper by Halpin P., et al. [MEDIA] https://youtu.be/VprqU9knS4Y?t=1533...
    Thread by: Suffolkres, Feb 19, 2021, 68 replies, in forum: Gulf War Illness
  15. Andy
    Thread

    What symptoms of ME that you personally experience is (a) not shown on your medical file and/or (b) not in the ME literature.

    As per title. Following a chat recently with my wife, it was made more obvious to me that (a) my medical record does not list what a crash might...
    Thread by: Andy, Feb 15, 2021, 83 replies, in forum: General and other signs and symptoms
  16. Marky
    Thread

    Muscle biopsy studies

    Hey We recently had the study which showed impaired glucose utilization in muscle biopsy samples Anyone know if we have more studies from muscle...
    Thread by: Marky, Jan 11, 2021, 16 replies, in forum: ME/CFS research news
  17. Marky
    Thread

    The possibility of autoimmunity or auto-reactivity in ME/CFS

    This thread was split from Open Medicine Foundation (OMF) News It is certainly true that not all autoimmune disease show useful benefit from...
    Thread by: Marky, Jan 4, 2021, 67 replies, in forum: Possible causes and predisposing factor discussion
  18. Barry
    Thread

    The 'C' in RCT

    I know much of this is old hat, but just wanted to revisit, with a particular thought in mind. Possibly in the wrong thread, in which case mods...
    Thread by: Barry, Dec 22, 2020, 30 replies, in forum: Trial design including bias, placebo effect
  19. mat
    Thread

    Studies and data on Post-exertional malaise (PEM)

    PEM has become a mandatory symptom in many CFS guidelines, so I would expect that there is plenty of data of monitored patients during the...
    Thread by: mat, Dec 2, 2020, 9 replies, in forum: Post-Exertional malaise and fatigue
  20. Andy
    Thread

    USA: NIH annual funding for ME/CFS research (discussion)

    NIH Funding for ME in 2020: Falling Flat NIH funding for ME/CFS research should be increasing each year. Everyone agrees that this is needed....
    Thread by: Andy, Nov 6, 2020, 15 replies, in forum: General ME/CFS news
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