discussion thread

Elbers, R.G., Rietberg, M.B., van Wegen, E.E.H. et al. (2012), Self-report fatigue questionnaires in multiple sclerosis, Parkinson’s disease and stroke: a systematic review of measurement properties, Qual Life Res (2012) 21: 925. https://doi.org/10.1007/s11136-011-0009-2 Abstract: Chalder...

The online guidance to doctors that I am reviewing has the following section about the use of antidepressants as treatments for ME/CFS: 1. The use of antidepressants in CFS has not shown a significant benefit:2 · There can be similarities in symptoms between CFS, depression, and...

Moderator note: This thread has been split from ubiome-receives-patent-for-diagnosing-me I don't think we can say that Fukuda is inferior to the CCC and ICC. The ICC and CCC tend to select ME/CFS patients with more severe impairments (and also select for patients with more psychiatric...

@Jonathan Edwards, I remember that in the other place several of us had a long discussion about what could explain the two peaks in onset-age for ME/CFS. I just saw the graph that we were discussing reproduced in Slide #25 of Karl Morten's recent talk in NZ...

I just learned that my doctor prescribe 1mg methylcobalamin once/month for me. What dose (in mg) do you use? How often do you inject it?

A few years ago, on the basis of my symptom tracking, I convinced my GP that ibuprofen was making a difference and she agreed to prescribe Mobic (meloxicam) as a trial (or perhaps she humoured me). It didn't work. My understanding is that Mobic is a COX-2 inhibitor whereas ibuprofen is both a...

Lightning Process- is CFS/ME psychological or physical? So, Phil fully acknowledges ME is wholly physiological ... but feels he needs to remind people how the LP can fix all that very nicely for you. Clear up some misconceptions ... :rolleyes: :sick: ETA: Is this even legal? @dave30th

Note from the moderators: The discussion in this thread is focussed on the BPS theory of deconditioning. There is another thread for discussing the issue raised in this post: Muscle atrophy ****************************** Hi Everyone My recent muscle biopsy of my thigh has led to what seems...

This thread has been split from https://www.s4me.info/threads/bmj-pressure-grows-on-lancet-to-review-“flawed”-pace-trial.5444/page-6 They seem to play these word games all the time. I have been trying to work out the attitude to "hysteria". In their book Wessely, Hotopf and Sharpe say @p232...

Posts on PEM moved from this thread as they had gone off topic.

This thread has been split from here There is a thread elsewhere discussing my Radical Care Pathway for ME/CFS, (now only available via Positive Health e journal). Because in my work as a psychotherapist, I have used NLP, I have come under the suspicion which NLP seems to arouse generally. I...

The claim that met my eye, on Cortene's website, was, 'We believe that a short course of treatment with CT38 may be curative.' OTOH, this seems to be some sort of commercial enterprise, being (I think) a drug company, or at least one that looks for uses for drugs (?), so maybe a bit of a pinch...

I'm posting this in here because it looks like the most likely candidate may be thyroid related, although I am not wedded to the idea, by any means. I had a digital thermometer turn up earlier today, ordered because my temperature seemed seriously high during a recent lurgi attack, which I have...

Is it possible to get a bacterial infection as a young teenager and then never lose it during the next 40+ years? I'm not talking about Lyme, Candida or EBV, I'm talking about a group B streptococcus infection. I have no further medical details about the infection, other than the fact that it...