germany

Copied post The German Society for General and Family Medicine (DEGAM) published its new guideline on "Fatigue". One chapter is about ME/CFS. https://www.degam.de/files/Inhalte/Leitlinien-Inhalte/Dokumente/DEGAM-S3-Leitlinien/053-002_Leitlinie Muedigkeit/Aktualisierung Dezember 2022/Langfassung...

(Thread created at the request of a member) IQWIG The independent Institute for Quality and Efficiency in Health Care (Institut für Qualität und Wirtschaftlichkeit im Gesundheitswesen, IQWiG) examines the benefits and harms of medical interventions for patients...

This interview with Professor of psychiatry Martin Walter also discusses ME/CFS and the IQWiG draft report in Germany. The title and quotes below are translated with Google Translate. At Jena University Hospital, Martin Walter, head of the Department of Psychiatry and Psychotherapy there...

Risk factors for worsening of somatic symptom burden in a prospective cohort during the COVID-19 pandemic https://www.frontiersin.org/articles/10.3389/fpsyg.2022.1022203/full

Abstract Background : The SARS-CoV-2 pandemic has strained health systems worldwide, and infection numbers continue to rise. While previous data have already shown that many patients suffer from symptoms for months after an acute infection, data on risk factors and long-term outcomes are...

Long COVID symptoms in exposed and infected children, adolescents and their parents one year after SARS-CoV-2 infection: A prospective observational cohort study Summary Background Long COVID in children and adolescents remains poorly understood due to a lack of well-controlled studies with...

Change.org petition to fund and expedite BC-007 research BC007 NOW- Chance of a cure for millions of suffering people From the English description call on the German government to financially support the approval studies of the company Berlin Cures GmbH for the drug BC 007 and to remove...

Fatigue is recognized as one of the most commonly presented long-term complaints in individuals previously infected with SARS-CoV-2. This systematic review was performed to describe symptoms, etiology, possible risk factors related to post-COVID-19 fatigue and the therapeutic approaches used for...

Abstract Background Recent studies have highlighted Coronavirus disease 2019 (COVID-19) as a multisystemic vascular disease. Up to 60% of the patients suffer from long-term sequelae and persistent symptoms even 6 months after the initial infection. Methods This prospective, observational study...

Full title: Neutralization of Autoantibodies Targeting G-Protein Coupled Receptors Improves Capillary Impairment and Fatigue Symptoms after COVID-19 Infection Abstract Clinical features of Corona Virus Disease 2019 (COVID-19) are caused by the severe acute respiratory syndrome coronavirus-2...

Full title: Recommendation for standardized medical care for children and adolescents with long COVID [German]. Statement of a multidisciplinary pediatric expert group of the DGKJ convent societies (status: February 2022) From: Dr. Marc-Alexander Fluks Source: Monatsschrift Kinderheilkunde...

Big article on ME/CFS in the influential German magazine Der Spiegel. It tells the story of Milena Hermisson a young patient and advocate with very severe ME/CFS. Her family has played an important role in the European ME Coalition (EMEC). Man kann sein Leben verlieren, ohne zu sterben...

Prevalence, determinants, and impact on general health and working capacity of post-acute sequelae of COVID-19 six to 12 month after infection: a population-based retrospective cohort study from southern Germany Peter, Kern et al https://www.medrxiv.org/content/10.1101/2022.03.14.22272316v1...

Abstract Background. Following COVID-19, patients often present with ongoing symptoms comparable to chronic fatigue and subjective deterioration of exercise capacity (EC), which has been recently described as postacute COVID-19 syndrome. Objective. To objectify the reduced EC after COVID-19...

Abstract Background Myalgic encephalitis or chronic fatigue syndrome (ME/CFS) has again come into focus as a result of coronavirus disease 2019 (COVID-19). Fundamentally problematic is the fact that ME/CFS is considered a separate entity; however, extreme fatigue is also a common symptom of an...

Recruitment Status : Not yet recruiting Sponsor: Schön Klinik Berchtesgadener Land Collaborators: Bavarian State Office for Health and Food Safety Praxis im Zentrum Erlangen Pneumologen Lichterfelde Berlin Pneumopraxis Marburg COVID ambulance Philipps-University Marburg Pneumologie Elisenhof...

Background: Communication between healthcare providers and patients with persistent somatic symptoms (PSS) is frequently hampered by mutual misunderstanding and dissatisfaction. Methods: We developed an online, interprofessional course to teach healthcare providers the knowledge, skills, and...

In conclusion, meals do matter in the evaluation and treatment of POTS. There are significant postprandial symptoms in POTS patients, which are related to exaggerated postprandial tachycardia. Possible mechanisms include enhanced splanchnic blood pooling, an increased secretion of vasoactive...

Thread split from The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS ***************** https://www.nature.com/articles/s41380-021-01148-4 Chronic post-COVID-19 syndrome and chronic fatigue syndrome: Is there a role for extracorporeal apheresis? 2021

[Can be signed by anybody] Quote: Our Pleas to the German Bundestag We ask the German Bundestag to commit itself to the provision of healthcare appropriate to the disease severity of ME/CFS, in particular by amending § 116b SGB V as well as through awareness campaigns. Further, we ask the...