The German/French TV channel ARTE premiered a documentary yesterday: "Living with Chronic Fatigue Syndrome". German and French can be chosen as languages, subtitles are available in English, Italian and Spanish.
It can be viewed online here and will also come to YouTube...
Abstract
Objectives
Acute Q fever is a generally self-limiting infection caused by the intracellular gram-negative bacterium Coxiella (C.) burnetii. For yet unknown reasons, a subset of patients develops chronic a infection. Furthermore, a Chronic Fatigue Syndrome (CFS) as post-acute Q fever...
Autoantibody helps with Long Covid
The German article
https://www.fau.de/2021/07/news/medikament-gegen-autoantikoerper-hilft-bei-long-covid/
The paper is most interesting because of microcirculation, plus the use of BC 007, originally a heart related drug, as a treatment...
Metasynthesis is currently considered one of the most promising directions for qualitative research, as it can contribute to the generalizability of qualitative findings and increase their impact.
At the same time, single case studies gain attention in the field of psychotherapy research, as...
Abstract
Background and Objective: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a severe illness with the hallmark symptom of Post-Exertional Malaise (PEM). Currently, no biomarkers or established diagnostic tests for ME/CFS exist. In Germany, it is estimated that over 300,000...
Nature - molecular psychiatry
Chronic post-COVID-19 syndrome and chronic fatigue syndrome: Is there a role for extracorporeal apheresis? - Bornstein et al
Abstract
As millions of patients have been infected by SARS-CoV-2 virus a vast number of individuals complain about continuing...
Abstract
During the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) pandemic, neurological symptoms increasingly moved into the focus of interest. In this prospective cohort study, we assessed neurological and cognitive symptoms in hospitalized coronavirus disease-19 (COVID-19)...
This seems like a competent person that can communicate the issues well. ME/CFS and PEM are mentioned in the article.
https://translate.google.com/translate?sl=de&tl=en&u=https://www.linkedin.com/pulse/der-umgang-mit-den-sp%25C3%25A4tfolgen-corona-pandemie-claudia-ellert
Dear Sirs and Madames...
Moved posts
That's a decision I've actually had to make, having lived with ME in Germany for the last 7 years. I've had a few ME/CFS docs recommended to me, some very well thought of by patients groups. Having checked them out (and I'd really love to find a good one), I've never found anything...
At University Hospital Tübingen, Germany, a "group of scientists from various disciplines interested in questions regarding Post-Covid that are relevant to [clinical] practice ["praxisrelevant"]" has designed a set of surveys (one for patients, one for doctors and one for other health...
Abstract
Chronic Fatigue Syndrome or Myalgic Encephaloymelitis (ME/CFS) is a frequent debilitating disease with an enigmatic etiology. The finding of autoantibodies against ß2-adrenergic receptors (ß2AdR) prompted us to hypothesize that ß2AdR dysfunction is of critical importance in the...
Abstract
Impairment of health after overcoming the acute phase of COVID-19 is being observed more and more frequently. Here different symptoms of neurological and/or cardiological origin have been reported. With symptoms, which are very similar to the ones reported but are not caused by...
Full title: Chronic COVID-19 Syndrome and Chronic Fatigue Syndrome (ME/CFS) following the first pandemic wave in Germany: a first analysis of a prospective observational study
https://www.medrxiv.org/content/10.1101/2021.02.06.21249256v1
There’s some good news from Germany.
Two federal agencies ,namely the Federal Ministry of Education and Research (BMBF) and the Federal Ministry of Health (BMG) have announced initiatives for ME/CFS. I hope I summarize these well because my German isn’t that good and it seems that the news...
The German ME/CFS organization Fatigatio is organizing a (digital) symposium in Hannover on 19 September 2020. Speakers include Michael Stingl, Carmen Scheibenbogen, Jonas Bergquist, and Bhupesh K. Prusty.
More information here: https://www.fatigatio.de/mecfs-fachtagung-2020-des-fatigatio-ev/
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