(Not a recommendation.)
To cure my chronic pain, I had to learn about the links between mind and body. The Guardian 1 Jul 2019
The BPS model of chronic pain proposed by Sarno, unresolved trauma etc, is what Howard Schubiner et al are suggesting is also applicable to ME/CFS. (As I have...
https://www.theguardian.com/society/2019/aug/08/watchdog-declines-to-back-nhs-cannabis-treatment-for-epilepsy
There seem to be some worrying parallels with Nice’s review of guidelines for ME. If only clinical trials are considered as evidence, where do we stand? Also if the guidelines committee...
https://www.theguardian.com/world/2019/aug/06/christian-science-church-medicine-death-horror-of-my-fathers-last-days
The terrifying power of dogma!... Presumably, any similarities with the imposition of biopsychosocial therapies on patients with ME are entirely coincidental, according to The...
Moderator note: Posts on this thread have come from three places, this thread and the following two threads. They have been copied or moved to keep the discussion in one place.
Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19...
They otherwise strike me as a publication that would side with patients and good science. Why not in this case, and is there anything that could be done?
This opinion piece is very interesting because of the players mentioned; an old friend from Reuters crops up and also a new friend who we discovered in the last week or so: the American Council on Science and Health (ACSH) who were behind the doxxing article which mentioned Michael Sharpe.
I...
From Recovery in the Bin
full article here
https://www.theguardian.com/commentisfree/2019/may/14/mental-health-services-crisis-patients-vulnerable-off-rolled?CMP=Share_iOSApp_Other
This a very long article, but a good one. I'm already familiar with the history of the now debunked theory that "saturated fat is bad and causes heart disease", but this article has some details and background I had not read about before. While reading it these specific passages stood out to me...
Interview in the Guardian.
full article here:
https://www.theguardian.com/tv-and-radio/2018/nov/12/i-was-preety-much-mute-at-school-the-bake-offs-kim-joy
Surf champion Tyler Wright reveals struggle with chronic fatigue
Australian pulls out of final event of season in Hawaii
‘My brain hurts,’ says two-time world champion
https://www.theguardian.com/sport/2018/nov/21/surf-champion-tyler-wright-reveals-struggle-with-chronic-fatigue
All types of websites use our illness to generate traffic and revenue. There is a way to reduce their reward for providing poor and or harmful information.
To use, either go to the website and paste the link to the site there, https://donotlink.it/ , or add https://donotlink.it/ to the front...
Moderator note:
This post and following posts have been moved from this thread
What role should the public play in science? - Science Weekly podcast
The Guardian's Science Weekly podcast , 2 Nov 2018...
Article in today's Guardian (https://amp.theguardian.com/society/2018/oct/24/diabetes-ticking-time-bomb-nhs)
about diabetes being a time-bomb for the NHS. This bit:
"Professor Khalida Ismail, professor of psychiatry and medicine at King’s College London and an honorary consultant liaison...
"Missing the fizz: my long battle to understand the mysteries of ME"
https://www.theguardian.com/society/2018/may/06/missing-the-fizz-my-long-battle-to-understand-the-mysteries-of-me
The author has written a book on pursuing alternative healthcare.
PACE bit, which does link to the new...
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